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Mary Geissler replied to the topic Ofev and Insurance in the forum Ofev (Nintedanib) 1 year, 3 months ago
Suddenly, everything insurance-related is getting more and more difficult. I am a St. of WI retiree and found two transplant centers who no longer, as of last month, will accept our good insurance. I do not know about this particular situation, but I do know that it’s disturbing that so many are suddenly having insurance issues. What’s the REAL…[Read more]
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Mary Geissler replied to the topic Household Chores & IPF! in the forum Diagnosis Information and General Questions 1 year, 3 months ago
I am glad to finally read where others are having issues with bending over! I asked my physician and the pulmonary rehab therapist why I could NOT put any pressure whatsoever on my lower abdomen – and bending over to put shoes on is impossible. They all seemed mystified why I could not, and actually felt pain/cramps. I still do not know why? Is it…[Read more]
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Mary Geissler replied to the topic "Breathless" Transplant News in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 3 months ago
Mike: can I ask how old you are? I keep wondering when my cohorts post these interesting situations, and since I am awaiting news at 73, I just am so curious how it goes for others. Thank you.
Mary
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Mary Geissler replied to the topic "Breathless" Transplant News in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 3 months ago
Hi Russel; It all sounds so scary for sure but when you read about people who have undergone the surgery and it’s behind them, it is extremely encouraging. I do not know how old you are, but I am 73 and being evaluated for a single lung. However, I manage my symptoms very well right now – and so not sure of next steps. I have no other health…[Read more]
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Mary Geissler replied to the topic Pulmonary Rehabilitation in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 6 months ago
HI — I was diagnosed spring of 2021, after noticing I could do literally nothing without becoming totally out of breath. It was a sudden change for me, as I had been, even at 73, quite active. I have no other health issues, so this was huge change for me. I sat around and babied myself from May-July. My Pulmonary dr said he was recommending me…[Read more]
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Mary Geissler replied to the topic Depressed and need support in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago
So sorry you have had these feelings. My mother passed from IPF and at 73, I was just diagnosed in May after having excellent health most all my life. I just got so sick with what I thought was bronchitis that left me exhausted and short of breath for two months. I am not on meds …yet…but I did enroll in the Pulmonary Rehab program through my…[Read more]
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Mary Geissler replied to the topic End of Life in the forum Diagnosis Information and General Questions 1 year, 7 months ago
Very touching to read of your journey. Thank you.
Mary
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Mary Geissler replied to the topic Do others with IPF cough for 20 minutes every morning? in the forum Living with Pulmonary Fibrosis: 50+ 1 year, 8 months ago
Before my diagnosis this summer, I initially came in with a cough that got to the point where my entire body ached and I threw up. My regular dr was out, but a D.O. came in and heard me – she said to try over-the-counter allergy medication. I thought it was worth a try – so I bought Allergen and Flonase nasal spray. My life became worth living…[Read more]
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Mary Geissler became a registered member 1 year, 8 months ago
Welcome to the PF forums Mary! Thanks for joining us 🙂