Forum Replies Created

  • Mary Walter

    Member
    May 16, 2023 at 9:15 am in reply to: ILD PF and terminal prognosis

    I was diagnosed in September 2022 and am progressing slowing.  I use oxygen at night (2L) and when I do anything strenuous.  I’m surprised at what is strenuous and what isn’t!  I, too, was stymied by “PF” and ILD-PF, and learned a lot from reading this thread.  I work out in Pulmonary Therapy twice a week, do an aqua exercise twice a week and do weights.  It’s so easy to just sit around.  I’m in Denver and the altitude is rough on me, even (or especially?) after four years.  I return to home to the Pacific NW or to LA CA two to four times a year and breath much better in those two places.

    It is tiring at times to live like this.