William Pommy

I sleep with oxygen on 4 L per minute  and a CPAP machine.  Well active during the day I use liquid oxygen small tanks and have it set on 10 L per minute sometimes up to 15 when I am going upstairs.  When grocery shopping I take one tank keep it on 10  and monitor my oxygen, and if it goes lower than 90 I increase to the next setting which is 15…[Read more]

I was diagnosed 16 years ago and I have been on oxygen 24 seven for a number of years now. I have been on Esbriet since it has been approved and take it religiously. I highly recommend pulmonary rehab which I have done several times and plan on doing again. Mindfulness has also helped. At 76 I feel the idea of a lung transplant is not for me.…[Read more]

I was diagnosed 16 years ago.  I’m now 76.  When I first discussed transplant with my pulmonologist, she said she would support the idea but to consider all the ramifications, anti rejection drugs, life expectancy, etc.  at the time I believe the life expectancy was five years as it is now.  I’m sure someone will correct me.  No one knows why I ha…[Read more]