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William Pommy

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@glassdrums

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    William Pommy replied to the topic Starting out with Esbriet in the forum Esbriet (Pirfenidone) 2 months ago

    I am 77 years old, and have been taking aspirate since it was approved by the FDA.  I did have a few issues as the prescription increased until I reached nine pills per day, which is what I’m on now.  As long as you follow the instructions, I see no problems with digestion.  Halfway through my meals I take the three pills.  That works. On occas…[Read more]

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    William Pommy replied to the topic IPF stages in the forum Living with Pulmonary Fibrosis: 50+ 8 months, 3 weeks ago

    I sleep with oxygen on 4 L per minute  and a CPAP machine.  Well active during the day I use liquid oxygen small tanks and have it set on 10 L per minute sometimes up to 15 when I am going upstairs.  When grocery shopping I take one tank keep it on 10  and monitor my oxygen, and if it goes lower than 90 I increase to the next setting which is 15…[Read more]

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    William Pommy replied to the topic Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 8 months, 3 weeks ago

    I was diagnosed 16 years ago and I have been on oxygen 24 seven for a number of years now. I have been on Esbriet since it has been approved and take it religiously. I highly recommend pulmonary rehab which I have done several times and plan on doing again. Mindfulness has also helped. At 76 I feel the idea of a lung transplant is not for me.…[Read more]

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    William Pommy replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 1 year ago

    I was diagnosed 16 years ago.  I’m now 76.  When I first discussed transplant with my pulmonologist, she said she would support the idea but to consider all the ramifications, anti rejection drugs, life expectancy, etc.  at the time I believe the life expectancy was five years as it is now.  I’m sure someone will correct me.  No one knows why I ha…[Read more]

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    William Pommy became a registered member 2 years, 2 months ago

    • Profile picture of Mark Koziol
      Mark Koziol replied 2 years, 2 months ago

      Hello William, thank you for joining your pulmonary fibrosis forum. Welcome!

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