Pete

Charles,
You do make some good points in your post. I just hope for your safety that you realize that the 4 on your portable is not 4 liters. It is more like 1 liter in reality at the highest setting. The manufactures of those lightweight portables need to change the markings to .25, .50, .75, 1 if they want to use liters then it would be telling…[Read more]

Natalie,
There is so much misunderstanding between pulse and continuous O2 out there between doctors and sales people. Pulse setting 5 on your Caire Freestyle Comfort is not even close to being 3LPM continuous. The pulse 5 setting on your portable Caire Freestyle Comfort is outputting 1050 ml of O2 per minute max (1 LPM). Your 3LPM concentrator is…[Read more]

I did the same by calling Genentech and they reached out and helped me.

I agree Pat, I don’t see progress being made in humans, only in mice.  So from a mouse study to geting approval I would estimate at least 5 years. And most of the progress that looks good in mice do not make it past Phase 2 of a trial. Trials take years to complete and to analize the data. Then FDA takes years to approve. Research seems to be…[Read more]

Don’t you need to take OFEV with a meal? 9 PM seems rather late for a meal .

A lot of great ideas. Thank You all. I found a pill container with 3 compartments. I am going to try using that for my Esbriet meds first and see how it goes. I thought I was the only one with this issue of forgetting meds, but now I see many with this issue. LOL

Thanks for the great tips folks. I will try them all. You would think the designers of home units and portable units would have designed something to hold the cannula and keep it germ free when not in use.

I found this info on Esbriet and am trying to understand it. Is it saying 80% of this expensive drug goes right through you and only 20% is being absorbed?
<h5 style=”font-size: 13px; font-family: ‘Open+Sans’, sans-serif;”>Elimination</h5>
<h5 style=”font-size: 13px; font-family: ‘Open+Sans’, sans-serif;”>The mean terminal half-life is…[Read more]

No appetite issues for me Terence. Always hungry here. Trying to lose a few pounds but its not happening.

Thank you Karen and Regina you both have helped. I will try the 4 hour intervals at meal times even though the Web Doctor in me thinks it should be 8 hours and thinks I am developing an ulcer.

Thanks Karen, I hear what you are saying. I thought 3 times a day would mean spreading it out every 8 hours and that’s what I was trying to do (breakfast, dinner, and b4 bed). My 3 meals are not 8 hours apart. My meals are only about 4 hours apart during the day. My meals are from 8 am to 6 pm. Do you think it is ok to squeeze the 3 doses in a 10…[Read more]

I hear what you are saying Mark but it’s hard for me to understand when they knew a vaccine was coming over 6 months ago and there are people way above my pay scale getting paid to figure this issue out. I wonder where I can apply for this type of job.<span style=”color: #303030; font-family: open sans;”><span style=”font-size:…[Read more]

I wonder why if the Covid-19 is so bad for everybody they aren’t vaccinating people 24 hours a day 7 days a week (24/7) ? I would have no problem going to an appointment in the middle of the night if that is what it takes to speed up the vaccination process.

Hi Charlene,

Thank You for your input. There is a lot of info in that one paragraph I did  not know or even thought of. I did not know POC’s flow rates only go so high, ten pounds is a lot of extra weight to carry around, nice to be able to charge battery in you car, and being able to fly with one is great. I have tanks so I currently cannot fly…[Read more]