[Gul]

I am Gul from Hong Kong . I was diagnosed with IPF after CT scan in Jan 2017 and my pulmonologist put me on perfenidone 600 mg gradually increased it to 2400 mg per day . I did not have any serious side effects  except skin rash which was manageable .  I am on oxygen 2litres for last one year.

In May 2022 my dyspnea worsened and after CT scan and Lung function test my pulmonologist advised me that perfenidone was not working anymore and he has now put me on Ofev 150 mg twice a day. Fortunately I am tolerating it well without any side effects . But my dyspnea has not improved . As I said I am on 2lit oxygen at rest but if I just get up to go from 9ne room to another my saturation drops to 84 percent and feel very breathless . Does anyone have this experience and I shall be grateful if it could be shared with me