mary-mariani
Biography
Name | Mary Mariani |
Nickname | mary-mariani |
Gender | Female |
Location | Columbus, Ohio |
Relationship | Patient |
Short Bio | About six years ago, I was diagnosed with non-specific interstitial pneumonitis caused by scleroderma. I had a CT which confirmed pulmonary fibrosis and was put on mycophenolate mofetil, an immune suppressant drug. My breathing tests indicated stability as far as the fibrosis goes until a few months back when it was suspected that pulmonary hypertension was developing. A heart catheterization confirmed that I had mild pulmonary fibrosis and I am now seeing a cardiologist who has prescribed sildenafil to bring the pressure in my pulmonary artery down. I also found a chiropractor in Columbus who has been doing the laser therapy suggested by Dr. Andrew Hall which I found out about by reading this blog! |
Type of Diagnosis | PF of known aetiology |
Current medication regimen | mycophenolate mofetil 500 mg 5 per day and sildenafil 20 mg 3 x day |
Lung transplantation status | to be determined |
Supplemental Oxygen | yes |
Best advice for PF symptom management | Try to relax and stay positive is the best advice I can give. Of course you should follow your doctor’s regimen, but don’t be afraid to ask questions or ask about alternative forms of treatment. It helps to participate in a forum such as this to find out how others with similar conditions are doing, too! |
Are you currently taking an anti-fibrotic medication? | yes |
How did you find us? | PF News Website |
How long have you or the person that you are caring for had PF? | Six years |
Privacy Policy and Terms of Use | I agree |