- Short Bio
About six years ago, I was diagnosed with non-specific interstitial pneumonitis caused by scleroderma. I had a CT which confirmed pulmonary fibrosis and was put on mycophenolate mofetil, an immune suppressant drug. My breathing tests indicated stability as far as the fibrosis goes until a few months back when it was suspected that pulmonary hypertension was developing. A heart catheterization confirmed that I had mild pulmonary fibrosis and I am now seeing a cardiologist who has prescribed sildenafil to bring the pressure in my pulmonary artery down. I also found a chiropractor in Columbus who has been doing the laser therapy suggested by Dr. Andrew Hall which I found out about by reading this blog!
- Type of Diagnosis
- Current medication regimen
mycophenolate mofetil 500 mg 5 per day and sildenafil 20 mg 3 x day
- Lung transplantation status
- Supplemental Oxygen
- Best advice for PF symptom management
Try to relax and stay positive is the best advice I can give. Of course you should follow your doctor’s regimen, but don’t be afraid to ask questions or ask about alternative forms of treatment. It helps to participate in a forum such as this to find out how others with similar conditions are doing, too!
- Are you currently taking an anti-fibrotic medication?
- How did you find us?
- How long have you or the person that you are caring for had PF?