Holly

I was tested for GERD three years post-DLT, because of a very slow but steady decrease in Fev1 over the previous year. I had no symptoms of reflux, but the test did show reflux, so fundiplication surgery followed. They did repair a hiatal hernia at the same time, which I also had been unaware of. It was weird having surgery for a condition I…[Read more]

Hello, everyone. This is Holly, Christie’s mom. I am 3.5 years post DLT. I did experience a complication after the surgery, a Strep infection in my new lungs which resulted in a month-long re-hospitalization. I had been in ICU for three months prior to my transplant. So, mine was a longer road than some, but I have been healthy since. I can relate…[Read more]

Hello,  Jade,

I am so sorry to read of your troubles.  These forums and the columns can be helpful,  especially if you are feeling alone. You are not! I refer you to a column here written by my daughter, Christie  Patient,  ” Busting 4 Myths about Lung Transplant. ”  She conferred with physicians on my lung transplant team to ensure accur…[Read more]

Hello, everyone. After a year of varying diagnoses and testing, my pulmonologist told me that I did have IPF. He tried to soften the blow by telling me I was an excellent candidate for lung transplant. I immediately began taking the necessary steps to qualify for the transplant list. This led me to talk to both my sister and brother, as I knew I…[Read more]

Thank you, Charlene, for all you do. My post is a bit weird because my computer froze as I was writing, and I didn’t know my words had been submitted. I would have edited and certainly finished with more encouraging words. I admire you greatly. I could never have been as open and supportive of others as you are! Letting us see each others’ dark…[Read more]

Hello, Charlene and fellow IPF warriors. Your article made me very sad, because I sense  completely understandable feelings of exhaustion, pain, anger, and perhaps bitterness. I am three years post transplant (DLT),  and I first want to express my admiration to all of you who have joined in supporting each other in the IPF community. After my d…[Read more]