Ian Neilson

Yes I have intense itching but more worrisome is a progression of extensive eczema of chest, back, outer arms and outer thighs, top and sides of feet. The rash started localized to my thighs last September.  I’ve been on Esbriet since 2016 with no appreciable progression of ILD.  I have fortunately very few symptoms (no cough just shortness of b…[Read more]

I was diagnosed with PF and started on pirfenidone in 2016.  I am also on omeprazole and a statin.  My younger brother had more severe PF with a fulminant course.  He had clubbing of the nails for decades.  His diagnosis was made very late.  My diagnosis was early in my symptom history so I started pirfenidone early in my disease course.  I belie…[Read more]