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Nina Merendino

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@insanity578

Nothing ! Seeing pulmonologist for testing next week. View
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    Nina Merendino posted a new activity comment 1 year, 4 months ago

    Yes. The same! Now they say I don’t have rheumatoid or autoimmune disease the why was I diagnosed with Ankylosis spondylitis and fibromyalgia and can barely walk a 1/2 block due to horrific pain???? I had the lung biopsy thru my trachea but it just showed mold. They want to do biopsy to rule out IPF versus UIP. Not doing it until I have a symptoms!

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      Martha McAdams replied 1 year, 4 months ago

      Thank you Nina! I think I am leaning in the same direction!

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    Nina Merendino replied to the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago

    I just finished reading a lot I love PF patients Like myself and I’ve had similar experiences with different pulmonologists!I was diagnosed with all the fibrosis in 2018 after having a chest x-ray to see if I had pneumonia after I had two bouts. with bronchitis. The first one wanted me to have a long biopsy on the operating table which I did not w…[Read more]

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    Nina Merendino replied to the topic Ipf or not in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 5 months ago

    I had bronchitis  in 2018 and doctor ordered X-ray looking for pneumonia. Instead my chest was abnormal and had cat scan which showed both Owen lungs fibroid and ground glass and opacities. Then I had pulmonary blowing tests and were a little less than normal. No one told me it was a fatal illness. Then they said come back in a year. Did tests…[Read more]

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    Nina Merendino became a registered member 1 year, 6 months ago

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      Christie Patient replied 1 year, 5 months ago

      Welcome to the forums Nina, thanks for joining us!

      • Profile picture of Nina Merendino
        Nina Merendino replied 1 year, 4 months ago

        Glad to find you!!!

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