Nina Merendino posted a new activity comment 1 year, 4 months ago
Yes. The same! Now they say I don’t have rheumatoid or autoimmune disease the why was I diagnosed with Ankylosis spondylitis and fibromyalgia and can barely walk a 1/2 block due to horrific pain???? I had the lung biopsy thru my trachea but it just showed mold. They want to do biopsy to rule out IPF versus UIP. Not doing it until I have a symptoms!
Nina Merendino replied to the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 4 months ago
I just finished reading a lot I love PF patients Like myself and I’ve had similar experiences with different pulmonologists!I was diagnosed with all the fibrosis in 2018 after having a chest x-ray to see if I had pneumonia after I had two bouts. with bronchitis. The first one wanted me to have a long biopsy on the operating table which I did not w…[Read more]
Nina Merendino replied to the topic Ipf or not in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 5 months ago
I had bronchitis in 2018 and doctor ordered X-ray looking for pneumonia. Instead my chest was abnormal and had cat scan which showed both Owen lungs fibroid and ground glass and opacities. Then I had pulmonary blowing tests and were a little less than normal. No one told me it was a fatal illness. Then they said come back in a year. Did tests…[Read more]
Nina Merendino became a registered member 1 year, 6 months ago
Thank you Nina! I think I am leaning in the same direction!