Hi, and thanks to William for starting this thread. We live in Cypress, TX, which is a Houston, TX, suburb, and it takes about an hour to get down to the med center area, where I get medical care. I was diagnosed with IPF in January 2022, when we lived in Austin, TX, and have had escalating symptoms since 2018. Started taking Ofev Oct, 31, often followed by Imodium for the side effects. I have been part of a PF Warriors support and a Houston-based group, both online. I have been feeling rough, but my O2 saturation is still in the 90s, so no oxygen yet. Some days I can still get in a short walk, but it really strains my breathing. I’ve lost around 30 pounds over the past two years and most of what I eat tastes like cardboard, but I’m trying to keep eating because my docs keep telling me to. My husband is taking on more and more and doing a great job, but I worry about his burning out. We are going to a family reunion over Thanksgiving for three days, and I’m worried about how I’ll do.
Oh, shoot, all I have done is complain! I’m sorry. Positivity: I’m sleeping better than I was and Greek yogurt takes pretty good.
