@janenmcbride
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Jane McBride replied to the topic What you need to know about Ofev in the forum Ofev (Nintedanib) 4 months ago
Hi Janette,
Like you Ofev seems to have stabilized the progression of my IPF, lovely to hear. However, I too had difficulty with the intestinal side effects on the 300mg a day. Not as badly as you but badly enough to plan my life around whether or not I could plan to go out with friends etc. My doctor changed the dosage to 200 mg…[Read more]
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Jane McBride replied to the topic The Frequency of Changing Your Nasal Cannula in the forum Living with Pulmonary Fibrosis: 50+ 5 months ago
Thanks for the tip of wearing the cannula at the back. It has really given my ears a rest and doesn’t dangle down the front getting in the way of everything. I wear it 24/7 and this suggestion was really a relief. Plan to rig some kind of easy belt to help with walking around doing housework, etc.
Am going to experiment with the cannula on my I…[Read more]
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Jane McBride posted an update 6 months, 2 weeks ago
This evening is the first time I have been aware of lazer therapy for IPF. May I please have some more information?
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Jane McBride replied to the topic Pulmonary Rehab May Improve Exercise Capacity and Quality of Life in IPF Patients in the forum Flash Briefings & Podcasts 7 months ago
Would appreciate recommendations for Pulmonary Rehab in Northern Illinois.
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Jane McBride posted a new activity comment 7 months ago
Thank you Charlene.
I have just moved to northern Illinois. Can anyone recommend a good pulmanologist with IPF interests? -
Jane McBride became a registered member 7 months ago
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Welcome to the PF forums Jane. Thanks for joining us!
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Thank you Charlene.
I have just moved to northern Illinois. Can anyone recommend a good pulmanologist with IPF interests?
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Hi @janenmcbride, so glad you’re part of our forums – welcome! There is lots of information on laser therapy, for informational purposes only (members should be sure to discuss this option with their providers or make an informed decision if laser therapy is right for them) on three threads on our site. You can find them here:…[Read more]