Janette MacDonald
Forum Replies Created
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Thank you for your quick reply. I will keep you posted. Maybe I’ll ask my pharmacist today about the sublingual imodium.
Janette
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I took so much imodium. I gave up coffee, dairy, any fatty foods. I was also told to avoid fiber. I didn’t drink coffee gir do long that now one cup and I get the jitters….lol.
I can drink decaf coffee though.
Thanks for information about sublingual tablet. I all my pulmonologist next time I talk to him
I’m going to call him on Tuesday because o heard that prednisone might help with the GI problem. Wish me luck.
Janette
PS enjoy your vacation
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Hello Mark.
Thank you for the information, but I’m in Canada. I’m going to research the hospice care fir the province I’m in.
Janette
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The next time I see my pulmonologist I’ll ask him. It won’t be for a couple of months. Maybe I’ll call his office on Tuesday and ask his nurse to ask him. I’ll keep you posted.
Janette
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I read somewhere that taking a steroid with OFEV will prevent the diarrhea. Has anyone else heard about this?
Thank you
Janette MacDonald
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As a smoker I know the damage I am doing to my lungs. I have tried every method used to try to quit. The coughing is terrible as I’m sure you know. I’m using vaping as an aid to quitting. While my doctors admit to not knowing much about vaping they have both said that they would rather see me with an e-cigarette than a real cigarette. Vaping has helped to stop my coughing.
Janette MacDonald
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Hello Mark
Thank you. I’ll be sure to check back in and update my results. The hardest part of this disease is that, so far, I feel fine
I get out of breath faster than I used to and can’t walk like I used to.
Janette MacDonald
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Hello everyone.
This is my first post. I initially tried Esbriet but it made me nauseous. I started on OFEV at 300 mg/day. I told my doctor about the diarrhea. He suggested that I try 200mg/day
That didn’t either, but I toughed it out. After losing 65lbs due to the diarrhea my doctor told me to stop it.
The 2 years I was taking OFEV my condition was stable. I’m just waiting on an appointment to be set up for a PFT to see if there has been any changes.