Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Jim

Home Members Jim
show less show more
Profile picture of Jim

@jbutch41

  • Activity
  • Profile
  • Friends 0
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Jim

    Jim replied to the topic Comparing portable oxygen concentrators in the forum Living with Pulmonary Fibrosis: 50+ 2 months ago

    1. I want to comment on POC’s
    2. i have used the respironics  simpli go.  —it was heavy with short battery life.
    3. I also used the Inogenone g5.  It works ok if you you only on 2-3 liters.  My pulmonologist said 6 liter on the Inogen is only equivalent to 3 liters on a tank, because of being a pulse machine. It works ok if you’re using 2-3 . Defi…

    [Read more]

  • Profile picture of Jim

    Jim replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 6 months ago

    Hi, I wanted to comment on lung transplant.  I was diagnosed in 2017 with IPF. I took OFEV for 5 years, I was listed this year for transplant.  I am now 4 months post double lung transplant it was well worth it for me, I was on up to 8 liters oxygen before surgery.  I came home with no need of supplemental oxygen. I have not had any problems so fa…[Read more]

  • Profile picture of Jim

    Jim replied to the topic How are long-term (4+ years) OFEV users doing? in the forum Ofev (Nintedanib) 1 year, 2 months ago

    I was diagnosed with IPF May of 2017.
    I started 150 mg of OFEV June of 2017. My numbers have declined slightly, but no where near transplant ready numbers. My next Cleveland Clinic follow up is in June and this will be 5 years on OFEV.

  • Profile picture of Jim

    Jim replied to the topic Do you take OFEV? Take our poll! in the forum Polls & Quizzes 1 year, 3 months ago

    Yes, I have been on OFEV almost 5 years.

    150 mg twice a day

  • Profile picture of Jim

    Jim replied to the topic Respiratory Therapy Programs in the forum Pulmonary Fibrosis Awareness & Advocacy 1 year, 3 months ago

    I was diagnosed with IPF almost 5 years ago.

    I went through pulmonary rehab, it helped me tremendously.

    I exercise at least 1 hr every day, exercise and staying active helps. I have been on oxygen for couple years now. Hope this helps, good luck.

  • Profile picture of Jim

    Jim replied to the topic WEI Institute Natural Care of Chronic Lung Diseases in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago

    <p style=”text-align: center;”>I tried WEI for a 3 month trial. It is very expensive and my pulmonary numbers continued to decline while taking it. Hope this helps.</p>

  • Profile picture of Jim

    Jim became a registered member 1 year, 7 months ago

    • Profile picture of Christie Patient
      Christie Patient replied 1 year, 7 months ago

      Welcome to the PF forums Jim, thanks for joining us!

Profile Photo Brendan

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Telomere length and specific genes associated with IPF: by James Rollins
  • An interesting book by Scott Robertson
  • Travel and Telling siblings and children after diagnosis of f-IPF by Lynn Maxim
  • Is this site still active? by Ruth Edwards
  • Swollen Belly IPF by Ina Enslin

Recent Replies

  • Sodium Pyruvate
  • Sodium Pyruvate
  • Sodium Pyruvate
  • Sodium Pyruvate
  • Sodium Pyruvate

Members

Newest | Active | Popular
  • Profile picture of Sam123
    Sam123
    Active 2 hours, 14 minutes ago
  • Profile picture of John
    John
    Active 2 hours, 37 minutes ago
  • Profile picture of Kyee Koh
    Kyee Koh
    Active 4 hours, 39 minutes ago
  • Profile picture of Mindy
    Mindy
    Active 5 hours, 7 minutes ago
  • Profile picture of Robert Nagell
    Robert Nagell
    Active 5 hours, 23 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies

Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©[current-year] KLEO Template a premium and multipurpose theme from Seventh Queen