Forum Replies Created

  • John Eames

    Member
    August 18, 2023 at 3:33 pm in reply to: Saracatinib

    That sounds great!  Will be looking forward to the results.

  • John Eames

    Member
    August 16, 2023 at 12:29 pm in reply to: Saracatinib

    Have been trying to find out if it is availabe by prescription but don’t think so. It is extremely expensive. $180 for 50mg pill. It is  available in India but need to research that.

  • John Eames

    Member
    August 15, 2023 at 3:08 pm in reply to: Saracatinib

    It is in clinical trials and looks very promising because it not only slows the progression but reverses the scarring.

  • John Eames

    Member
    October 18, 2022 at 3:10 pm in reply to: OFEV cost and assistance

    Hi Gina

    Thanks for the information. I have not pursued any other avenues re:OFEV cost/payment since my application was denied. Now Open door keeps calling me to re-apply. Don’t know if I want to go on OFEV after reading the side effects. Think I will just monitor the pulmonary function test and see what happens.

  • John Eames

    Member
    July 29, 2022 at 7:09 pm in reply to: OFEV cost and assistance

    Hi Ray

    Thanks for the great information. I will follow up with the India lead and see what happens.

    It is unconscionable to charge $3000/month for a life saving drug.

    Will let you know the progress.

    Thans Again

    John

Report

Harassment or bullying behavior
Contains mature or sensitive content
Contains misleading or false information
Contains abusive or derogatory content
Contains spam, fake content or potential malware

Block Member?

Please confirm you want to block this member.

You will no longer be able to:

  • See blocked member's posts
  • Mention this member in posts
  • Invite this member to groups
  • Message this member
  • Add this member as a connection

Please note: This action will also remove this member from your connections and send a report to the site admin. Please allow a few minutes for this process to complete.

Report

You have already reported this .