Jerry Barnum
@Jerry Barnum
•
Joined Nov 2020 •
Active 2 years ago
Biography
| Name | Jerry Barnum |
| Nickname | jerry-barnum |
| Year of Birth | 1951 |
| Gender | Male |
| Location | Minnesota |
| Relationship | Patient |
| Short Bio | I am currently taking Ofev for IPF diagnosed officially in July, though present as early as 2017 in previous lung scans for growth in lungs that remains unchanged. Familial connections with 8 aunts, uncle, cousin, siblings with PF, 3 surviving including me. Smoker until 2008, some environmental exposure to mold. Had biopsy in September. Upper and lower lung fibrosis. 25% decline in PFT from July to October. |
| Type of Diagnosis | familial/genetic PF |
| Treatment / Medical Facility | IPF Center, U of MN, UPMC, Pittsburgh, Sanford, Fargo |
| Current medication regimen | Ofev, 150 mg, 2x daily; prednisone, 20mg daily |
| Lung transplantation status | to be determined |
| Supplemental Oxygen | no |
| Best advice for PF symptom management | Looking for advice. |
| Are you currently taking an anti-fibrotic medication? | yes |
| How did you find us? | Physician |
| How long have you or the person that you are caring for had PF? | Officially diagnosed in July, 2020, evidence in 2017 |
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