Biography

Name

Jerry Fussell

Nickname

jerry-fussell

Year of Birth

6/30/1951

Gender

Male

Location

Taiwan/from Florida

Relationship

Patient

Short Bio

Diagnosed with IPF Feb 2022 after 14 months of examinations as per Taiwan’s National Health Care Service requirements. The doctor put me on Ofev along with other medications.  After 24 months on Ofev my lung functions are back to 95%, up from my lowest point of 60%. The most difficult side effect of Ofev was the diarrhea. My doctor then prescribed imodium which caused severe constipation. Next he prescribed Smecta which is a powder mixed with water. This medication works very well as I can control how strong of a dose I need. Since it is a powder, I can adjust the dosage according to my needs.  I can live an almost normal life though I have to stay away from dairy products.

Type of Diagnosis

IPF

Treatment / Medical Facility

Kaohsiung City Ta Tung Medical Hospital

Current medication regimen

Smecta, Cortisone Acetate, Xyzal,DL-Methylephedrine, Ofev, Relvar Ellipta(spray) AVAmys(spray), Spiriva Respimat(spray), azETln(spray)

Lung transplantation status

to be determined

Supplemental Oxygen

no

Best advice for PF symptom management

I do deep breathing exercises, physical exercises, take medication as directed.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

Other

How long have you or the person that you are caring for had PF?

36 months

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