• Have been taking Esbreit for about 4 years with no side effects…..It has helped slow down the progression……..I have been lucky…….Waiting for the Bio-techs to come out with something that stops it…….PRM 151 I think is going to Phrase 3…..Promedoir I think is the company…..

    • Hello Jim, thank you for keeping us informed. Let’s cross our fingers that your disease never progresses. Let’s also pray for a cure. I am not familiar with PRM151 but I am going to look into it. There are several other medicines in phase 1 and 2 that also looks promising. Thank you again for the info. Mark

  • Jim McCool posted a new activity comment 1 year, 7 months ago

    My Doc told me that it isn’t the numbers but the quality of life……..My six minute walk is always over 90…usually around 91-92-93……but diffusion has dropped to 35 from 56 2 years ago….Have been on Esbreit for 2 years and no problems but not sure if it is working…..What are number supposed to be to be off of oxygen? Thank you………Jim

    • I am on oxygen.a six minute walk would drop me down to 80 0r less..thats with out ox. I was told to hook up when I go below 88.thats seems to be happening a lot.i have a portable tank but have not used it outside YET.hope this helps?your dr.is wise.quality is the most important thing for me.tried ofev but it took my quality down to the…[Read more]

  • Jim McCool posted a new activity comment 2 years ago

    TY

    • My Doc told me that it isn’t the numbers but the quality of life……..My six minute walk is always over 90…usually around 91-92-93……but diffusion has dropped to 35 from 56 2 years ago….Have been on Esbreit for 2 years and no problems but not sure if it is working…..What are number supposed to be to be off of oxygen? Thank you………Jim

      • I am on oxygen.a six minute walk would drop me down to 80 0r less..thats with out ox. I was told to hook up when I go below 88.thats seems to be happening a lot.i have a portable tank but have not used it outside YET.hope this helps?your dr.is wise.quality is the most important thing for me.tried ofev but it took my quality down to the…[Read more]

  • Jim McCool posted an update 2 years ago

    Taking Esbreit 801 mg 3 x a day in stead of 267 3 times a day with meals for a total of 9 a day…….Lucky with no side effects……….Numbers are taken every 6 months,,,PFT Test and 6 minute walk…….they go up and down only by a couple points each time….so far so good………..

  • Jim McCool's profile was updated 2 years ago

  • Jim McCool became a registered member 2 years ago

    • Hi Jim, thanks for joining the PF forums and welcome!

      • TY

        • My Doc told me that it isn’t the numbers but the quality of life……..My six minute walk is always over 90…usually around 91-92-93……but diffusion has dropped to 35 from 56 2 years ago….Have been on Esbreit for 2 years and no problems but not sure if it is working…..What are number supposed to be to be off of oxygen? Thank you………Jim

          • I am on oxygen.a six minute walk would drop me down to 80 0r less..thats with out ox. I was told to hook up when I go below 88.thats seems to be happening a lot.i have a portable tank but have not used it outside YET.hope this helps?your dr.is wise.quality is the most important thing for me.tried ofev but it took my quality down to the…[Read more]

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