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Jim McCool

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@jim-mccool

Have been taking Esbreit for about 4 years with no side effects…..It has helped slow down the progression……..I have been lucky…….Waiting for the Bio-techs to come out with something that stops it…….PRM 151 I think is going to Phrase 3…..Promedoir I think is the company….. View
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    Jim McCool replied to the topic When should you start antifibrotics? in the forum Join the Discussion: Welcome to all PF/IPF Patients 9 months, 1 week ago

    Esbreit is being made Generic by Teva and Sandos and one other Pharmaceutical……that should bring the cost down……….

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    Jim McCool joined the group Group logo of Research and DevelopmentResearch and Development 3 years, 6 months ago

  • Profile picture of Jim Dawson

    Jim Dawson and Profile picture of Jim McCoolJim McCool are now friends 3 years, 7 months ago

  • Profile picture of Jim McCool

    Jim McCool posted an update 3 years, 11 months ago

    Have been taking Esbreit for about 4 years with no side effects…..It has helped slow down the progression……..I have been lucky…….Waiting for the Bio-techs to come out with something that stops it…….PRM 151 I think is going to Phrase 3…..Promedoir I think is the company…..

    • Profile picture of Mark Koziol
      Mark Koziol replied 3 years, 11 months ago

      Hello Jim, thank you for keeping us informed. Let’s cross our fingers that your disease never progresses. Let’s also pray for a cure. I am not familiar with PRM151 but I am going to look into it. There are several other medicines in phase 1 and 2 that also looks promising. Thank you again for the info. Mark

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    Jim McCool posted a new activity comment 4 years, 6 months ago

    My Doc told me that it isn’t the numbers but the quality of life……..My six minute walk is always over 90…usually around 91-92-93……but diffusion has dropped to 35 from 56 2 years ago….Have been on Esbreit for 2 years and no problems but not sure if it is working…..What are number supposed to be to be off of oxygen? Thank you………Jim

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    • Profile picture of ARMY PETE
      ARMY PETE replied 3 years, 6 months ago

      I am on oxygen.a six minute walk would drop me down to 80 0r less..thats with out ox. I was told to hook up when I go below 88.thats seems to be happening a lot.i have a portable tank but have not used it outside YET.hope this helps?your dr.is wise.quality is the most important thing for me.tried ofev but it took my quality down to the…[Read more]

  • Profile picture of Jim McCool

    Jim McCool posted a new activity comment 5 years ago

    TY

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    • Profile picture of Jim McCool
      Jim McCool replied 4 years, 6 months ago

      My Doc told me that it isn’t the numbers but the quality of life……..My six minute walk is always over 90…usually around 91-92-93……but diffusion has dropped to 35 from 56 2 years ago….Have been on Esbreit for 2 years and no problems but not sure if it is working…..What are number supposed to be to be off of oxygen? Thank you………Jim

      • Profile picture of ARMY PETE
        ARMY PETE replied 3 years, 6 months ago

        I am on oxygen.a six minute walk would drop me down to 80 0r less..thats with out ox. I was told to hook up when I go below 88.thats seems to be happening a lot.i have a portable tank but have not used it outside YET.hope this helps?your dr.is wise.quality is the most important thing for me.tried ofev but it took my quality down to the…[Read more]

  • Profile picture of Jim McCool

    Jim McCool posted an update 5 years ago

    Taking Esbreit 801 mg 3 x a day in stead of 267 3 times a day with meals for a total of 9 a day…….Lucky with no side effects……….Numbers are taken every 6 months,,,PFT Test and 6 minute walk…….they go up and down only by a couple points each time….so far so good………..

  • Profile picture of Jim McCool

    Jim McCool's profile was updated 5 years ago

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    Jim McCool became a registered member 5 years ago

    • Profile picture of Charlene Marshall
      Charlene Marshall replied 5 years ago

      Hi Jim, thanks for joining the PF forums and welcome!

      • Profile picture of Jim McCool
        Jim McCool replied 5 years ago

        TY

        • Profile picture of Jim McCool
          Jim McCool replied 4 years, 6 months ago

          My Doc told me that it isn’t the numbers but the quality of life……..My six minute walk is always over 90…usually around 91-92-93……but diffusion has dropped to 35 from 56 2 years ago….Have been on Esbreit for 2 years and no problems but not sure if it is working…..What are number supposed to be to be off of oxygen? Thank you………Jim

          • Profile picture of ARMY PETE
            ARMY PETE replied 3 years, 6 months ago

            I am on oxygen.a six minute walk would drop me down to 80 0r less..thats with out ox. I was told to hook up when I go below 88.thats seems to be happening a lot.i have a portable tank but have not used it outside YET.hope this helps?your dr.is wise.quality is the most important thing for me.tried ofev but it took my quality down to the…[Read more]

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