Forum Replies Created

  • JKU

    Member
    October 10, 2024 at 7:44 pm in reply to: New drug

    I too am in the Pliant trial. I also take Ofev. I was diagnosed in Oct 2023. I just had my 6 mo trial check up and there was NO change in pulmonary function tests or CT scan. This trial is still ongoing. My side effects are the same as with Ofev. At this point I’m very encouraged!

  • JKU

    Member
    June 4, 2024 at 4:46 pm in reply to: Medscape – The Future of IPF

    The drug company for one of the drugs mentioned in the podcast recently announced they will start the phase 3 trial as soon as they have their max participants enrolled in phase 2b in their attempt to help speed things up. Don’t give up hope. There’s also a possibility of compassionate use for drugs that haven’t gotten to market. Keeping the faith!!

  • JKU

    Member
    November 2, 2023 at 3:40 pm in reply to: Blood thinners

    I’m interested in the same topic. I too am on Xarelto for the same reason and the pharmacist told me I should be OK on both but to watch for nose bleeds, bruising, etc. I start Ofev on Monday.

  • JKU

    Member
    November 11, 2023 at 1:31 pm in reply to: Ofev and zinc

    Thanks for this info. I’m newly diagnosed and just started Ofev. I also purchased the zinc plus other 2 OTC supplements. Does anyone know if you are suppose to split the daily dose of the NAD + and other supplement into two different times of day or take it all at once?