John Barnett

DXD Jan 2012. Ended up losing my job, but was old enough to take retirement. Qualified for SS so did not have to face the uncertainty of looking for employment. Initially given a prognosis of 3-5 years possibly seven.

Early on, I investigated clinical trials thinking that they might give me an opportunity to prolong my life or at least improve…[Read more]

i was in the PRM trial. According to my research coordinator, the results were less than anticipated. It was determined that there were few if any benefit to patients to continue the trial.

rereading this and my post, I realized that I kind of avoided the question. When should I start anti-fibrotics? Your current pulmo advises against it until you get worse? Wow! I think I would get another opinion if possible. I mean, would a cardiologist advise you to wait for heart medications until you had a heart attack, if you are showing signs…[Read more]

I read everyone’s replies in this thread. And since I am an IP patient and take Ofev, my opinion is not much different.

One hesitation that I have in recommending Ofev is the price and coverage. Here in the good ol USA, price and copay can range quite a bit. I’m on Medicare and due to my limited income, qualify for a scholarship to pay the…[Read more]