JT

I was diagnosed with IPF in March 2020. I started taking 150 mg Ofev twice daily in April. Awful side effects resulted in changing my dosage to 100 mg of Ofev. I still have ongoing problems with diarrhea but some OTC meds and watching my diet carefully, eating less have helped. I was able to change to a much better pulmonologist recently who did…[Read more]

Mark, I am so sorry to hear of your brother’s passing.  It was very moving to read about his last days and your thoughts. It’s a subject that I have wondered about when I think about my own end of life planning and how it will affect loved ones. It’s not an easy topic but we in this group have a bit more urgency to be able to anticipate what may…[Read more]

<p class=”MsoNormal” style=”margin-bottom: .0001pt; line-height: normal;”><span style=”mso-spacerun: yes;”> </span>Hello all. I have been reading the forums since diagnosis of IPF last March following a bout with flu and pneumonia. Very few symptoms before diagnosis other than weakness and inability to do much aerobic and strength exercising,…[Read more]

This caught my attention when I first read it. I was diagnosed last March after a bout with flu then pneumonia. Xrays showed the IPF. I started taking the 150 mg twice per day of Ofev. I had all the horrible side effects expected and then some not expected. I can detail all that later.

The interesting thing is that after a few weeks of the…[Read more]