-
JT replied to the topic Dealing with Smokers in the Workplace in the forum Employment & Pulmonary Fibrosis 1 year, 4 months ago
Charlene, you are such a wonderful support to all of us on these forums. I think you need some support yourself in this matter.
I have worked as a safety and risk management consultant to businesses for more than 30 years and you are not being difficult in asking for a safe workplace. It is required by law and your employer is putting your…[Read more]
-
JT replied to the topic Has OFEV been effective in slowing your progression? in the forum Ofev (Nintedanib) 1 year, 8 months ago
I was diagnosed with IPF in March 2020. I started taking 150 mg Ofev twice daily in April. Awful side effects resulted in changing my dosage to 100 mg of Ofev. I still have ongoing problems with diarrhea but some OTC meds and watching my diet carefully, eating less have helped. I was able to change to a much better pulmonologist recently who did…[Read more]
-
JT replied to the topic What should I expect as IPF progresses? in the forum Caregivers and Spouses 1 year, 11 months ago
Mark, I am so sorry to hear of your brother’s passing. It was very moving to read about his last days and your thoughts. It’s a subject that I have wondered about when I think about my own end of life planning and how it will affect loved ones. It’s not an easy topic but we in this group have a bit more urgency to be able to anticipate what may…[Read more]
-
Kathleen Ryan and
JT are now friends 1 year, 11 months ago
-
JT replied to the topic Ofev in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 11 months ago
<p class=”MsoNormal” style=”margin-bottom: .0001pt; line-height: normal;”><span style=”mso-spacerun: yes;”> </span>Hello all. I have been reading the forums since diagnosis of IPF last March following a bout with flu and pneumonia. Very few symptoms before diagnosis other than weakness and inability to do much aerobic and strength exercising,…[Read more]
-
JT replied to the topic Head aches in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 years, 2 months ago
This caught my attention when I first read it. I was diagnosed last March after a bout with flu then pneumonia. Xrays showed the IPF. I started taking the 150 mg twice per day of Ofev. I had all the horrible side effects expected and then some not expected. I can detail all that later.
The interesting thing is that after a few weeks of the…[Read more]
-
JT posted a new activity comment 2 years, 7 months ago
Thank you, Mark.
I just saw your welcome as I was updating some of my profile information. I’ve been reading the daily updates in my email and am so grateful for all the posts. I’m about ready to participate I think. -
JT's profile was updated 2 years, 7 months ago
-
JT became a registered member 2 years, 9 months ago
-
Hello JT, we are to happy to have you as a member of the pf forum. Welcome!
-
Thank you, Mark.
I just saw your welcome as I was updating some of my profile information. I’ve been reading the daily updates in my email and am so grateful for all the posts. I’m about ready to participate I think.-
You are most welcome!
-
-
-