Forum Replies Created

  • Hi Charlene,

    Thanks for your response and for heading up this informative forum.I think this conversation of “living with” and , or “fighting” IPF struck a cord in me because it reminded me of a discussion I had with my Priest a few months ago.

    Letting go a little bit and “living with”IPF seems to make more sense to me as time goes bye . Through personal experience I know to “fight” constantly is, as I’ve said exhausting.

    I am sure that for me I must kick back a little and look at each day as a gift; unique it all it’s 24 hour adventure.

    The following is something I found just before my hospital stay in March of 2018.It gives me a perspective that ties in to this discussion.

    “”Why be saddled with this thing called life expectancy? Of what relevance to an individual is such a statistic? Am I to concern myself with an allotment of days I never had and was never promised? Must I check off each day of my life as if I am subtracting from this imaginary hoard? No, on the contrary, I will add each day of my life to my treasure of days lived. And, with each day, my treasure will grow, not diminish.” ~ Robert Brault

    Thanks again Charlene and all the contributors! Happy New year!

    Julian

  • Julian Arizola

    Member
    December 29, 2018 at 7:18 am in reply to: Avoiding the “Fight” Mentality as a Chronically-Ill Patient.

    This subject touched on a lot of how I think at times. I appreciate everyone’s contribution to the subject. The debate of “living with” or “fighting against IPF” was one I never thought of. Since my diagnoses it’s been all about “the fight”. I think that can be an exhausting state of mind. I never just considered “living with” IPF. Maybe I will learn to take a day off here and there and give myself some days where I do relax a little and “live with”IPF

    Thanks,
    Julian