Biography

Name

Katherine

Nickname

KatC

Last Name

Cope

Year of Birth

1950

Gender

Female

Location

Indiana U.S.

Relationship

Patient

Short Bio

SOB for many years before diagnosis of chronic Hypersensitivity Pneumonitis with fibrosis. No identified cause. Using 2-4 l oxygen past 6 years, taking Cellcept most of that time. Used Ofev for 18 months before side effects were too severe.  Pulmonary is relatively stable.

Type of Diagnosis

IPF

Treatment / Medical Facility

University of Chicago

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Best advice for PF symptom management

Keep exercising

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Facebook

How long have you or the person that you are caring for had PF?

6 years since diagnosis- actual time unknown

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