Biography

Name

Kenneth Overby

Nickname

kenneth-overby

Year of Birth

1944

Gender

Male

Location

United States

Relationship

Caregiver

Short Bio

I am presently a caretaker for my wife who has Pulmonary Fibrosis and Chronic Pulmonary Arterial Hypertension. I am a retired Telecommunication Engineer from AT&T/Lucent Technologies. After retirement, I went to school for Medical billing and coding. I am presently a freelance writer.

Type of Diagnosis

familial/genetic PF

Treatment / Medical Facility

Monitored by a Pulmonary Specialist and Researcher at Mt. Sinai Hospital in NY.

Current medication regimen

My wife is taking mycophenolate which was initially created to prevent lung transplant patients from rejecting the implant. She has been taken off steroids that were prescribed by a NJ Pulmonologist.

Lung transplantation status

to be determined

Supplemental Oxygen

yes

Best advice for PF symptom management

Presently we have ordered genetic tests to see if a mutated gene is causing the problem. My research showed that a mutated CFTR gene might be the problem causing the Pulmonary Fibrosis and a mutated BMPR2 gene might be causing the Pulmonary Hypertension. We were informed that the tests would take about 8 weeks.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

1 year

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