[Kim Jacomo]

Hi everyone,

Are there any updates on finding OFEV?  I haven’t had any luck in receiving assistance.

Thank you,

Kim

[Kim Jacomo]

John, please let us know if the Yale doc has any updates on the drug.  I’m having a difficult time finding OFEV, but perhaps since Saracatinib is also used for some cancers the cost of the drug wont be as daunting as OFEV and Esbriet.

[Kim Jacomo]

Mark,

My brother is having a horrible photo sensitivity to the Esbriet and is interested in switching to Ofev, however, he has a heart condition and has been warned that Ofev would not be a good thing to go on.  Have you heard anything lately of Ofev and heart isssues?

Thanks,

Kim

[Kim Jacomo]

My brother has been on the 1 pill a day for a few months, but he seriously experiencing a really bad case of photosensitivity to the drug.  Has anyone experienced terrible skin reaction to the sun on Esbriet?  He is spending his time in the basement just to get out of any kind of light.  I suggested he ask his pulmonologist to either lower the dose or move to OFEV but he has a heart condition.  Which is my other question…does anyone know that people with IPF should totally avoid OFEV if they have a heart condition?  Or are the risks the same in both drugs.  Thanks.