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Karen Rachal replied to the topic Bird fancier’s lung in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 months, 2 weeks ago
I had parrots for 30 years. In 2011 after a car accident, I had a chest X-ray. No problem. In 2016, I had another chest X-ray in the emergency room. No one told me about the fibrosis. Not the er doctor or my pcp. It was Christmas Eve and I should have read the discharge paperwork. At my follow up with my pcp, he didn’t mention it. I was d…[Read more]
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Karen Rachal replied to the topic Everyday Challenges of Living with Pulmonary Fibrosis in the forum Living with Pulmonary Fibrosis: 50+ 8 months, 3 weeks ago
My pulmonologist tells me my progression is minimal so I try to keep up my routine. Unfortunately my routine is now walking 1 1/2 miles a day followed my a pulmonary rehab video, followed by a two hour nap. Two other days it is a workout at the gym on resistance machines, followed by the rehab video, followed by a two hour nap. I still cook di…[Read more]
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Karen Rachal replied to the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 9 months, 3 weeks ago
I don’t talk about my appointments unless I’m asked. I don’t usually tell anyone but my husband thatI have an appointment. I quit because if I said I had a good appointment, everyone thought that I was getting better. I’ve told everyone that I won’t be getting better, I’m just trying not to get worse. I am not a candidate for transplant.
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Karen Rachal replied to the topic Household Chores & IPF! in the forum Diagnosis Information and General Questions 1 year, 2 months ago
I turned over the vacuuming to my husband when I kept getting tangled in my tubing. I finally remembered the backpack I got for my OxygoNext. I had to sideline it when I broke 5 ribs. I drug it out today and managed to vacuum 3 rooms. So nice not to get tangled in the tubing.
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Karen Rachal posted a new activity comment 1 year, 4 months ago
Thanks Mark. Sorry I didn’t see this before now.
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Karen Rachal replied to the topic The Harsh Realities of Lung Transplantation in the forum Pre/Post Lung Transplant 1 year, 4 months ago
I was diagnosed in Oct. 2018. I had a pulmonologist who told me that I was not a candidate for a transplant. I asked him about clinical trials but never got an answer. He did help me get on Esbriet. After two years, I found a clinical trial at Shands in Gainesville, Florida. I changed pulmonologists and he sent me for evaluation with a tran…[Read more]
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Karen Rachal replied to the topic Remembering if you took Medications in the forum Diagnosis Information and General Questions 1 year, 7 months ago
I have a 7 day pill box. I just count out 9 per day. That solved the problem for me.
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Karen Rachal replied to the topic Concentrator nasal cannula storage in the forum Diagnosis Information and General Questions 1 year, 9 months ago
Nothing has worked for me, so I keep a supply of alcohol wipes on hand.
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Karen Rachal became a registered member 3 years, 4 months ago
Hello Karen, thank you for joining your pulmonary fibrosis forum. Welcome!
Thanks Mark. Sorry I didn’t see this before now.