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Paul B ~ Lakeland

Home Members Paul B ~ Lakeland
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@pbugz12

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    Paul B ~ Lakeland and Profile picture of Wendy DirksWendy Dirks are now friends 3 weeks, 2 days ago

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    Paul B ~ Lakeland replied to the topic Occupation-Related IPF in the forum Employment & Pulmonary Fibrosis 3 weeks, 3 days ago

    For 22 years, I was exposed daily to fumes from plastics processing. Sent SDS (Safety Data Sheet) information to my pulmonologist. Will discuss during my next visit.

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    Paul B ~ Lakeland changed their profile picture 4 weeks, 1 day ago

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    Paul B ~ Lakeland replied to the topic Top 4 Words You'd Use to Describe IPF in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 weeks, 1 day ago

    Reflective
    Unknowns
    Limiting
    Mindfulness

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    Jorge Ríos and Profile picture of Paul B ~ LakelandPaul B ~ Lakeland are now friends 2 months, 1 week ago

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    Paul B ~ Lakeland and Profile picture of Rod DannerRod Danner are now friends 2 months, 3 weeks ago

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    Paul B ~ Lakeland replied to the topic OFEV low 02 levels in the forum Join the Discussion: Welcome to all PF/IPF Patients 2 months, 3 weeks ago

    I would be cautious to assume the OFEV is the primary cause of lower 02. Definitely check with Pulmonologist.

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    Paul B ~ Lakeland and Profile picture of David OtaDavid Ota are now friends 2 months, 3 weeks ago

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    Paul B ~ Lakeland replied to the topic Do you take OFEV? Take our poll! in the forum Polls & Quizzes 2 months, 4 weeks ago

    Will those of us who participated in the poll, get to see cumulative results??
    Paul ~ Lakeland

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    Paul B ~ Lakeland replied to the topic OFEV low 02 levels in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 months ago

    Hi Ron,
    Diagnosed 10 months ago. I’ve been on OFEV 6 months. No drop in O2 level yet.
    Paul – Lakeland

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    Paul B ~ Lakeland's profile was updated 3 months ago

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    Paul B ~ Lakeland replied to the topic Household Chores & IPF! in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 months, 2 weeks ago

    Allergy testing would be helpful, as it was for me. Peace of mind to know.

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    Paul B ~ Lakeland replied to the topic Controversial Conversations Regarding COVID-19 Vaccines in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 3 months, 4 weeks ago

    Hi David,
    I am sorry you have to go ‘underground.’ I feel that as long as I’m masked and 10 feet away from others, I’m relatively safe. Let me know how it goes. Thanks!
    Paul B.

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    Paul B ~ Lakeland replied to the topic Remembering if you took Medications in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 6 months, 2 weeks ago

    Pete, 9am to 9pm works best for me. I’ll have a small snack at 9pm with the Ofev just to be sure my stomach isn’t empty. Paul

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    Paul B ~ Lakeland replied to the topic Remembering if you took Medications in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 6 months, 2 weeks ago

    Hi Pete, Like Bob, I set permanent alarms on my cellphone for 9am and 9pm everyday. I then also stop whatever I’m doing to take my OFEV. I use the daily treatment journal that came with it faithfully, checking the box and time I took it. Hope this helps. Paul B – Lakeland

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    Paul B ~ Lakeland replied to the topic OFEV purchase in the forum Ofev (Nintedanib) 6 months, 2 weeks ago

    Hi Bruce, I started Ofev 2 months ago. I am 69 years old so I’m on Medicare thru United Healthcare. AARP Medicare Advantage Focus. I applied for the BI (maker) grant, but was declined as we are over the income limit. Bottom line – $2,700 for first month, then $600 every month thereafter out-of-pocket. Hope this helps. Paul B – Lakeland

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    Paul B ~ Lakeland replied to the topic Inhaler use in the forum Join the Discussion: Welcome to all PF/IPF Patients 6 months, 2 weeks ago

    Hi Liz, My PCP had me using Spiriva at first. I thought it helped. Later, my pulmonologist told me that the ingredients in Spiriva have little or no effect on PF, but if I am more comfortable with it, keep using it. She later prescribed Albuterol. I have an Rx for that now but do not need it frequently. Hope this helps. Paul B – Lakeland

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    Paul B ~ Lakeland posted a new activity comment 8 months ago

    Char…
    No, it was not officially a result of Covid. The day I was diagnosed with covid, they said the x-ray was funky. Three months later another ‘funky’ x-ray. The first CT scan showed PF. The next Hi-rez CT scan confirmed it. So, we deduced the covid kick-started the PF, which I already had, but had yet to show any symptoms. Hope this helps.…[Read more]

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    Paul B ~ Lakeland and Profile picture of Charlene MarshallCharlene Marshall are now friends 8 months ago

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      Paul B ~ Lakeland replied 8 months ago

      Char…
      No, it was not officially a result of Covid. The day I was diagnosed with covid, they said the x-ray was funky. Three months later another ‘funky’ x-ray. The first CT scan showed PF. The next Hi-rez CT scan confirmed it. So, we deduced the covid kick-started the PF, which I already had, but had yet to show any symptoms. Hope this helps.…[Read more]

  • Profile picture of Paul B ~ Lakeland

    Paul B ~ Lakeland replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 8 months ago

    I’m 69, live in Lakeland FL. Was diagnosed with IPF 4 months ago. Taking OFEV 150. No nausea, mild GI irregularity. Enjoying life one day at a time. Going to Univ of FL pulmonary dept next week just for confirmation of all tests and bloodwork. My pulmonologist also in Lakeland. No support groups here, but will do zoom group next month. If anyone…[Read more]

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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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