@pbugz12
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Paul B posted a new activity comment 3 weeks, 3 days ago
Char…
No, it was not officially a result of Covid. The day I was diagnosed with covid, they said the x-ray was funky. Three months later another ‘funky’ x-ray. The first CT scan showed PF. The next Hi-rez CT scan confirmed it. So, we deduced the covid kick-started the PF, which I already had, but had yet to show any symptoms. Hope this helps.…[Read more] -
Paul B and
Charlene Marshall are now friends 3 weeks, 3 days ago -
Paul B replied to the topic Where do you live, receive care, and are you in a local support group? in the forum Polls & Quizzes 3 weeks, 4 days ago
I’m 69, live in Lakeland FL. Was diagnosed with IPF 4 months ago. Taking OFEV 150. No nausea, mild GI irregularity. Enjoying life one day at a time. Going to Univ of FL pulmonary dept next week just for confirmation of all tests and bloodwork. My pulmonologist also in Lakeland. No support groups here, but will do zoom group next month. If anyone…[Read more]
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Paul B replied to the topic What Do You Wish You'd Known When You Were Diagnosed with PF? in the forum Diagnosis Information and General Questions 4 weeks, 1 day ago
Having had Covid last December, then frequent cough for 4 months, then PF diagnosed, I wonder if the Covid kind of ‘kick-started’ the PF? Has anyone heard of a similar path toward PF diagnosis? Thanks! Paul in Lakeland
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Paul B joined the group
Research and Development 4 weeks, 1 day ago -
Paul B posted an update 4 weeks, 1 day ago
Hello Everyone!
I was dignosed with IPF in April. I’m 69 and just started OFEV yesterday. Mild side effects, no nausea. I feel so blessed so far in life that it’s hard to be upset right now. Going to Univ of Florida next week just for a second opinion, although I have a good pulmonologist here in Lakeland. Can anyone tell me where I can find the…[Read more]-
Hi Paul, welcome to the forums! Theres a lot of good information here about supplemental oxygen, antifibrotics, and life expectancy. Generally the advice among people actually living with this disease (which you’ll see frquently discussed in the forums) is not to put too much stock in numbers that doctors give you. There are so many variables…[Read more]
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Paul B changed their profile picture 4 weeks, 1 day ago
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Paul B became a registered member 4 weeks, 1 day ago
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Welcome to the forums Paul, thanks for joining us!
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Char…
No, it was not officially a result of Covid. The day I was diagnosed with covid, they said the x-ray was funky. Three months later another ‘funky’ x-ray. The first CT scan showed PF. The next Hi-rez CT scan confirmed it. So, we deduced the covid kick-started the PF, which I already had, but had yet to show any symptoms. Hope this helps.…[Read more]