kurt-kempf
Biography
| Name | Kurt Kempf |
| Nickname | kurt-kempf |
| Year of Birth | 12-30-1957 |
| Gender | Male |
| Location | Jacksonville Florida |
| Relationship | Patient |
| Short Bio | Diagnosed with IPF March 2017. Approved for OFEV in August & started @ 100 mg August 25th 2017. Following dosage increase to 150 mg twice daily OFEV was not well tolerated. after 2 1/2 years of stopping & restarting OFEV, I had to stop permanently. Going to my Fourth Pulmonary specialist since being diagnosed. |
| Type of Diagnosis | IPF |
| Treatment / Medical Facility | Pulmonary & Critical Care : Dr Amit K. Chackravarty Md. : Cisca Pulmonary & Critical Care Dr Bruce Yergin (not pratcing) & Dr Alexis Vasquez : St. Vincents Health Care Dr Taiwen Chen. |
| Current medication regimen | Trelegy Ellipta for COPD |
| Lung transplantation status | ineligible |
| Supplemental Oxygen | no |
| Best advice for PF symptom management | Find a good Dr who is knowledgeable with treatment of IPF & associated issues. But also be able to explain how your condition has changed, along with what can be done to improve your quality of life. Ask for copy’s of EVERY TEST your Dr’s order and have them show you what each mean to you & what can be done about it if possible. You have the right to know AND understand what condition your health is in. I had reports of IPF about xrays & CT scans I never knew about from February 2009 until late 2016. 3 Cardiologists, 3 Endocrinologists & 2 Primary care/Internal medicine Dr’s all had these reports but never informed me. |
| Are you currently taking an anti-fibrotic medication? | no |
| How did you find us? | Other |
| How long have you or the person that you are caring for had PF? | Testing for IPF began in the last quarter of 2016 however as early as February 2009 Radiologist documentation of numerous chest xrays & abdominal CT scans specifically suggested i should be evaluated for IPF. Over the next few years these reports claimed increased worsening of IPF by the radiologists. all of the results were made available to all of my health care providers throughout all the years i was a patient including 3 Cardiologists, 3 Endocrinologists & 2 Primary care physicians. I can not understand why it took so long for all of these medical professionals to miss this critical information for the 7 years the radiologist has been putting in every report. |
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