- Short Bio
Long term survivor. Ill since 2005. Diagnosed by lung biopsy in February 2009. Walks by Faith?, not by prednisone? Yep, I happen to be that one person out of every 100 who develops steroid mania whenever steroids are prescribed. So I avoid it like the coronavirus.
- Type of Diagnosis
- Lung transplantation status
- Supplemental Oxygen
- Best advice for PF symptom management
In 2009, I was diagnosed with IPF and given six months to live. Well, despite not receiving any medication at all in the midst of the coronavirus, year 2021 is knocking at my door and I am still here. Lessons learned: Do not allow a doctor’s declaration as to when you’re going to die become your reality. Instead, research all of your options and together, select the one that gives you the most peace of mind. Also sign up for pulmonary rehabilitation. It does wonders for your lungs and body. Lastly, engage in a relaxing activity each and every day.
- Are you currently taking an anti-fibrotic medication?
- How did you find us?
- How long have you or the person that you are caring for had PF?