Forum Replies Created

  • likos

    Member
    January 17, 2025 at 4:55 pm in reply to: Serious Side effects of OFEV

    Thanks David

    I really appreciate the information from your experience.

    A couple of questions

    – What do you mean by get strong now?

    – What triggered your diagnosis?

    Nick

  • likos

    Member
    January 15, 2025 at 11:16 am in reply to: Serious Side effects of OFEV

    Hi, I am new to IPF. I was diagnosed in June 2024 and I started Ofev in late Aug 2024. For 3 months I didn’t have any side effects, now diarrhea is an occational occurence so far. I take the medication as presctibed and like some mentioned I avoid foods that Ofev doesn’t like.

    During my appointment with the respirologist in Dec 2024 I asked again what my diagnosis was, doctor’s reply “challanging”, so not sure. I asked the question because I don’t have any IPF symptoms and lead a normal life incluidng regular exercise and the last CT Scan was stable and my breathing test was normal.

    I don’t know what to make of all this. I would appreciate any comments/information from anybody that has been diagnosed and has no sysmptoms or had no sysmptoms at the time of diagnosis but later on developed symptoms

    Keep well. Thanks