[Elizabeth Ostrycharz]

Hi Richard,

Thanks for clarifying the use of inhalers for IPF. Just to be sure I am understanding correctly,  a steroid inhaler may or may not help someone with IPF and no other underlying lung problems, just depends on the individual.

Thanks again  ,Liz

[Elizabeth Ostrycharz]

Hi Paul and Renee, thanks for your reply. I guess I will keep using it till I see my GP again.  If its not doing any good I can’t see the point in taking it and so far I have not seen any improvement.  Appreciate your response.

Liz

[Elizabeth Ostrycharz]

Hi Wendy,thanks for your prompt reply.  I know they are prescribed for asthma, COPD and possibly other lung diseases but for some reason I always assumed that they did nothing for IPF. I  have only been trying it for 2 days, I will give it a week or so and see how it goes.

Thanks again, Liz

[Elizabeth Ostrycharz]

Judy, further to my previous post another good resource is the following web site,

https://www.health.qld.gov.au/nutrition/patients. scroll down to High Protein/High Energy diet.  It is an Australian Govt Web Site and  you will find really good info.

Hope this helps

[Elizabeth Ostrycharz]

Hi Judy, I too was losing weight and had no appetite. I was recommended to a dietician and she has really helped me. Apart from the high nutritious diet what has worked best for me was her suggestion of 6 small meals during the day rather than the traditional breakfast, lunch, dinner. She also recommended milk powder added to a glass of milk or cereal (if you can handle it) and smoothies. I have gained about 2 kilos and best of all I have an appetite again.

Cheers, Elizabeth

[Elizabeth Ostrycharz]

Marianne and Susan,

Thank you so much for your replies, its great to have this forum to turn to.

Cheers, Elizabeth

[Elizabeth Ostrycharz]

Hi, I am new to the forum and I have recently started on Oxygen, my prescription is for 2LPM as needed. First of all I am in Australia so our health system is probably a little different to others,but basically I was provided with a home concentrator but nothing portable.  I would like to get a POC so  that I can continue with my daily walks  and  I have been reading all the information on this forum and on the web plus I have talked to some providers  and am getting so confused. I have gotten conflicting information as to whether the small units would be sufficient for me or not.  Ideally I would like to get an Inogen 5 so was wondering if anyone would know if that would supply enough oxygen for my needs. Thank you very much , this forum has been a tremendous help to me and I do appreciate the kindness and support of everyone.. It means a lot.

Elizabeth

 

[Elizabeth Ostrycharz]

Hi everybody, I too have started to experience headaches, I am on Esbriet so thought it was a side effect of the meds but now I am thinking it maybe another wonderful symptom of IPF……………………… they are slight and usually go away after a few hours but another thing to deal with and we don’t need any more, right?