[Karen]

@marianne –

Hope you are doing well.

I go to rehab at an outpatient facility associated with Mount Carmel. I had contemplated switching to a regular gym but realized that it would be best to remain with this rehab facility as they are trained in case anything were to happen and they do have supplemental oxygen.

I am having a difficult time accomplishing the stair exercise. I keep telling myself it will help in the long run but it definitely wears me out. But I will succeed.

I began using oxygen only as needed 2015. I have recently had to increase my need for supplemental oxygen to 24/7 within the last 3 months. It really has been an adjustment to say the least, especially going out in public. I find talking to others that have to use supplemental oxygen helps tremendously.

I had to stop working 2 years ago on the advice of my former pulmonologist. I moved in with my son and his family a little over a year ago after living in Kentucky for over 25 years. My condition was worsening and unfortunately I did not have family close by that could help me.

I am only listed at OSU at the present time. Hopefully it will be a short wait. They have a great team. If you have any questions I  will be more than happy to answer them.

Karen

 

[Karen]

Marianne, I have been listed at OSU for transplant since Feb 12, 2019.  Any questions you may have (and anyone else, too) I will be more than happy to try and answer for you.

I do go to rehab twice a week and at my last appointment it was suggested to climb the 14 steps in my house 6 times a day! I am having a difficult time getting that accomplished. I must be stronger than my excuses shouldn’t I?

Karen

 

[Karen]

Hello all,

I just recently joined to be able to post to forums although I have been a member of this group for quite some time.

I was diagnosed with IPF in May 2015, and have been on Ofev since July of that year.  I did experience the diarrhea and nausea within the first 6 months. I occasionally have diarrhea but nothing that immodium can’t handle. I was told by my pharmacist and pulmonologist that taking a dose of immodium with each dose is perfectly fine, but I reccomend that you discuss this with your doctor. Ofev needs to be taken 10-12 hours apart with food. If you have problems with nausea, I would recommend eating peanut butter.

If anyone has any questions please ask. Thank you for allowing me to join this wonderful group!!