Biography

Name

LoraLee Bailey

Nickname

loralee-bailey

Year of Birth

1960

Location

Virginia

Relationship

Family

Short Bio

My husband and I are both retired RNs. We met in the ED 17 years ago. Our life together has been wonderful. We are both a little whacky! Two months after my husband (Bill) retired he got really, really sick. The worst flu symptoms I’d ever seen and difficulty breathing which was new for him. We went to Urgent Care and the flu swab was negative. But his chest X-ray was strange. No pneumonia. Just what appeared to be scarring nearly 1/2 up on both sides. SpO2 was 88%!!! This was November 2019. Since then it’s been CXRs, PFTs (which he fails) and increasing SOB. He is now on round the clock O2. This is a man who was VERY active. Has never smoked a day in his life. He still tries to be active doing chores around the house and even went back to work 1-2 days a week at the Coumadin clinic sticking fingers, counseling patients and administering medications. So far so good. But I must say this diagnosis of Pulmonary Fibrosis feels like a death sentence for us both.

Type of Diagnosis

IPF

Treatment / Medical Facility

Winchester Medical Center, Dr. Lessar

Current medication regimen

Ofev 1, twice daily

Lung transplantation status

considering later

Supplemental Oxygen

yes

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

At least 2 years

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