Biography

Name

Luciane Horton

Nickname

luciane-horton

Year of Birth

08/25/1964

Gender

Female

Location

USA

Relationship

Patient

Short Bio

My son, John Philip Horton has IPF. He was diagnosed 6 years ago when he was 21 years old. It has been a long journey for all of us. Last year, we almost lost him. A bad cold, turned in pneumonia and that turned in a 5 day coma. He is on oxygen mostly 24/7 since then and listed with a LAS of 38. He never recuperated fully since his coma.

He has started a blog and an Youtube channel. Handitravels.com he talks about traveling with IPF. It has been a great therapy for him.

Type of Diagnosis

IPF

Treatment / Medical Facility

New York Presbyterian Hospital

Lung transplantation status

eligible

Supplemental Oxygen

yes

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Facebook

How long have you or the person that you are caring for had PF?

7 years

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