I have had the same thing happen to me. My O2 levels drop any time I do any kind of activity (low 80’s to low 70’s). Any time I do any kind of work or go outside and walk around my O2 level drops very low.
When you went back on Esbiret did your levels go back up? Also have very sore muscles, hands, feet, back, legs etc….
Mike
I was on Esbriet for two years (3 tablets a day) and had very few problems. The only problem I had was skin trouble. Dry bumpy skin on my face and head (pre-cancer, so my Dermatologist said). I have had no gastrointestinal side effects. I can eat anything I want. I have just been changed to OFEV. The reason the Doctor changed me was because of my reaction to the sun. I am on oxygen 24/7. I was diagnosed in 2020. I haven’t had any problems with OFEV as of yet. I can eat anything I want.
Mike
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