Forum Replies Created

  • michael lewis mcdowell

    Member
    March 2, 2022 at 10:44 am in reply to: OFEV low 02 levels

    I have had the same thing happen to me. My O2 levels drop any time I do any kind of activity (low 80’s to low 70’s). Any time I do any kind of work or go outside and walk around my O2 level drops very low.
    When you went back on Esbiret did your levels go back up? Also have very sore muscles, hands, feet, back, legs etc….
    Mike

  • michael lewis mcdowell

    Member
    January 2, 2024 at 8:40 pm in reply to: Apple watch oxygen app vs. other pulse oximeters

    Hi, i am the same, I even went into the high 60’s several times. When were you diagnosed ?

    2020 was my notice.

    Mike

  • michael lewis mcdowell

    Member
    January 12, 2022 at 8:44 am in reply to: Prospective change of meds: OFEV to Perfenidone

    I was on Esbriet for two years (3 tablets a day)  and had very few problems. The only problem I had was skin trouble. Dry bumpy skin on my face and head (pre-cancer, so my Dermatologist said). I have had no gastrointestinal side effects. I can eat anything I want. I have just been changed to OFEV. The reason the Doctor changed me was because of my reaction to the sun. I am on oxygen 24/7. I was diagnosed in 2020. I haven’t had any problems with OFEV as of yet. I can eat anything I want.

    Mike