I have stopped playing golf because mt breathing has gotten worse almost overnight. Do you guys that are still playing wear your oxygen machine while swinging your club ?

Thanks,

Mack

Hy Steve, please keep us posted about any news you come across concerning this new drug.

Thanks,

Mack

I’m using Boost Oxygen when I play golf and it seems to help so far.

Mack

I am very interested in this product and hope it is available soon. Please let me know if you have any information, please.

Thanks,

Mack

I started on Ofev May 2021 and have had constant diarrhea. The first of March I started to have blood in my stool. Has anyone else had this problem?

I was diagnosed in May 2021 and have been on 150 does of Ofev twice a day since with all of the diarrhea problems. I have been fine and able to play golf 2-3 times a week, riding in a golf cart. I just started noticing I was a little out of breath on the practice tee warming up last week and then about 3 days later, just like you flipped on…

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My doctor changed my meds from 100 dose of ofev to 150 dose. Has anyone had to happen and how did it work out ? I’ve been on 100 dose since May 2021.Thanks

Thanks for your reply !

I have been on100 does of Ofev twice a day since May 2021. I have had no couch or shortness of breath until about 30 days ago. My shortness of breath seems to be getting a little worse each day and my couch has come back. My doctor wants to raise my Ofev to 150 twice a day. Has anyone experienced anything like this before and did the 150…

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Thanks for the responses. I’m 78 and always had low blood pressure until diagnosed with PF in May 2021.

Has anyone’s blood pressure gone up since diagonosed with PF ?

Thanks for your reply

I tried everything for my diarrhea and nothing worked at all.

Sorry but I don’t know what BMI is.

My new doctor at UT Southwest Medical In Dallas, Texas has me scheduled for a PFT in three months.

I weight 150 pounds so I don’t know if the 150mg was just too much or not.  I just hope the the 100 works as well as the… Read more

Dr. Salzberg

Do you think two of 100 is as effective as the 150 two times a day ?

My doctor reduced my does because of severe diaarhea. The 150 stopped my couch and helped my breathing. I hope the 100 will work as well.

 

Thanks

Hi Robert, I’ve been on Ofev 150 twice a day since 5/27/21 and have very serious diarrhea every day. So I’ve stopped taking since last Saturday and am back to normal. The Ofev stopped my cough and helped my breathing. I have tried the immodium gelcaps and they didn’t work either.

any other ireas ?