Forum Replies Created

  • Laura Denne

    Member
    September 14, 2018 at 9:29 am in reply to: Portable oxygen

    My husband just passed away this week, but we have had the Inogen G3 for sale for about a month. If you might be interested in getting a gently used, almost new, “top of the line” Inogen for about half price, please email me at [email protected] and I would be happy to give you more information. It is important to know that this machine has a maximum output of 6 liters. Many people stay at 2 or 3 liters for a long time and can use the machine for travel or just convenience (it’s approved for air travel and is small, lightweight, and somewhat discreet…unlike oxygen bottles) My husband’s disease was progressive (IPF) and we knew that eventually he would ‘outgrow’ the machine, which he did about 6 months ago. It was SO wonderful to have for the years he used it. It allowed us to travel extensively all over the world!

  • Laura Denne

    Member
    July 12, 2018 at 8:28 am in reply to: Food Preferences When Struggling to Eat

    I would also be interested in ANY suggestions people may have to offer. Since starting Ofev, my husband has had no appetite and started to lose weight. It is hard to get enough calories into the poor man!

    That being said, his “go to” foods are smoothies and soups…things that don’t require much effort to get down. I make the snmoothies with yogurt, protein powder, and fresh fruit. He loves homemade potato soup and Lipton Chicken Noodle soup, so those are always on hand (or in the freezer). Hamburger has replaced steak, and eating “in” is what we do now rather than going out and ordering much more food than he could ever eat.

    Exercise is almost a thing of the past, and we are thinking that the upcoming “6-minute walk test” required by the insurance company to renew the prescription for bottled oxygen, is going to be a big joke. He can walk about 2 minutes without having to sit and “catch his breath”…and that is WITH oxygen! Sometimes I wonder who makes up the rules. Certainly nobody who has ever experienced IPF.

    Adjustments. Hard to manage sometimes. I wouodreally like to hear how others are dealing with the appetite issue.