I would also be interested in ANY suggestions people may have to offer. Since starting Ofev, my husband has had no appetite and started to lose weight. It is hard to get enough calories into the poor man!
That being said, his “go to” foods are smoothies and soups…things that don’t require much effort to get down. I make the snmoothies with yogurt, protein powder, and fresh fruit. He loves homemade potato soup and Lipton Chicken Noodle soup, so those are always on hand (or in the freezer). Hamburger has replaced steak, and eating “in” is what we do now rather than going out and ordering much more food than he could ever eat.
Exercise is almost a thing of the past, and we are thinking that the upcoming “6-minute walk test” required by the insurance company to renew the prescription for bottled oxygen, is going to be a big joke. He can walk about 2 minutes without having to sit and “catch his breath”…and that is WITH oxygen! Sometimes I wonder who makes up the rules. Certainly nobody who has ever experienced IPF.
Adjustments. Hard to manage sometimes. I wouodreally like to hear how others are dealing with the appetite issue.
