Biography

Name

Chris

Nickname

magmae50

Gender

Female

Location

USA

Relationship

Patient

Short Bio

I have had shortness of breath about 4 years. 2years ago I was diagnosed with NSIP after an open lung biopsy.  (Non Specific Interstitial Pneumonitis) I have been rapidly losing strength and breathing capability.  I’m on oxygen 24/7.

Type of Diagnosis

IPF

Current medication regimen

Mycophenolate 3,000 mg daily

Lung transplantation status

to be determined

Supplemental Oxygen

yes

Best advice for PF symptom management

Looking for hope and sound medical advice.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

4 years minimum