Biography

Last Name

Mann

Nickname

Malcolm Mann

Short Bio

Fellow coughers

I am 68h & 3/4, male and have been very fit most of my life, I was running until Jan this year until arthritis in my feet stopped me running, but I’m still ocean swimming several times a week, albeit with a wet suit and an effective but lazy stroke ( I’m still competitive in my agegroup)

 My impairment is low, my lung function still within normal, but I’m still coughing, after 20 years, and about 10 doctors and 4 specialists. Since diagnosis of PF in 2015 my condition and lung function has declined slowly.

I have recently been referred to the lung clinic in Prince Alfred Hospital in Sydney , where either an open lung biopsy, or going straight onto anti fibrosis meds have been proposed.

Interestingly with the lung biopsy they are requesting I volunteer for an additional procedure, a new bronchioscope method to ascertain if the less invading bronchioscope procedure can duplicate the open lung biopsy result.

Still not sure which way to go.

 

 

Type of Pulmonary Fibrosis?

PF of known aetiology

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