[Marilyn Mott]

I was finally approved for OFEV, but I had an exacerbation while in the hospital for possible pneumonia and was read the DNR questions. After a week longer in ICU, I was sent home on hospice with oxygen levels of 7 and 13 liters. Then my package of OFEV arrived with an enclosed package of diarrhea medicine. At that point, I decided to not take the medication.
After weeks of bed rest, oxygen masks, and meds, I have begun to improve. I then had a very severe case of shingles, which called for gabapentin for the nerve pain. Wonderful side effect was it really helped with my cough.
Physical therapy helped to restore the flabby muscles and now I can walk trailing my oxygen tubing from my bed to the bathroom and kitchen where I have done light cooking.
I came home on hospice April 2, 2019, and now 9 months later, I am better than when I came home. If I make it to the end of December, I will have my 80th birthday.
I have been the caregiver for my husband for the last six years for his short term Alzheimer’s. Four weeks ago he was diagnosed with a kidney stone and sent home to pass it. During this time he had a mild heart attack and now he is no longer able to be my help. I have sitters.
Sorry for the rambling; perhaps something that I have said will encourage others with this terrible disease to keep trying to overcome obstacles one day at a time.