Mary Echberg
Forum Replies Created
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Hi @mark-koziol, I too use an oximeter and all my readings (pre oxygen) are below 90. I generally only use oxygen via concentrator, at night but, on occasions I use it when I feel breathless. Good luck. Mary
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I was denied access to completing your survey. Maybe because I live in Australia. I was diagnosed with IPF in October 2015, my treatment consisted of CPAP machine, oxygen and cortisone puffer twice daily. I asked about pulmonary rehabilitation and the use of the antifibrotic drugs (On several occasions) and was told by my respiratory physician I didn’t need them. In March 2018 I obtained a second opinion only to find I did not have IPF but Interstitial Lung Disease of no known origin, but, probably related to a history of smoking 20 years ago. I have undertaken pulmonary rehabilitation, diagnosed with asymptomatic gastric reflux (contributing to my cough +++) which will be operated on this month, and then I will start one of the antifibrotic drugs. The corrected diagnosis has had a positive impact on my mental health.
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Hi Charlene – thankyou for your response. My most recent lung function tests were in February, however, I was quite sick for about 3 weeks in January and only now in March I think I’m on top of it. The physician only commented on one positive result which was my perfusion had improved. I know my LFT overall was not asgood as previous results because I had been quite unwell (really gave me an eye opener as to what to inspect in the future). I’ll be more forthcoming at my next appointment in June. I find the forum conversations valuable and helpful but also quite upsetting – a little bit of a reality check. Thank you again Mary.