Pulmonary Fibrosis News Forums | Luis Pernia | Activity https://pulmonaryfibrosisnews.com/forums/members/mayid46/activity/ Activity feed for Luis Pernia. Tue, 21 Apr 2026 13:38:44 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 2ba8bef7b74fd9e9101af1f4665d4767 Luis Pernia replied to the discussion Sodium Pyruvate in the forum Clinical Trials https://pulmonaryfibrosisnews.com/forums/forums/topic/sodium-pyruvate/#post-35193 Thu, 08 Jun 2023 14:59:21 -0500 Reply to Sodium Pyruvate

<span style=”vertical-align: inherit;”><span style=”vertical-align: inherit;”>Saludos a todos. </span><span style=”vertical-align: inherit;”>Sigo sus comentarios sobre esta alternativa para la Fibrosis Pulmonar, que se genera desde el 2019, pero a la fecha después de 4 años no se ven comentarios si realmente es efectiva o no. </span><span… Read more

]]> 441567ed0f728ddb95cf5f3375c7faaf Luis Pernia replied to the discussion Deep Tissue (or red light) Laser Therapy in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/deep-tissue-or-red-light-laser-therapy/#post-34290 Wed, 01 Feb 2023 01:31:24 -0600 Reply to Deep Tissue (or red light) Laser Therapy

Hello, I understand from my wife, with the treatment with esbriel. they cannot carry sunlight and less infrared on the skin. I don’t know what you guys can think.

]]> 005b71fb44273fc0f72b3ac136b795f9 Luis Pernia replied to the discussion Has anyone seen the film "More Than Ever" about an IPF patient? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/has-anyone-seen-the-film-more-than-ever-about-an-ipf-patient/#post-34227 Tue, 24 Jan 2023 20:39:52 -0600 Reply to Has anyone seen the film "More Than Ever" about an IPF patient?

Hello Franco, not really, but if you saw it and have something to contribute, please do.
It’s more interesting when you comment on something in particular.
I hope to read you.

]]> 45a0ac9f31aedd382d15644512c8a330 Luis Pernia posted an update: @charlene-marshall Hello Charlene, my greetings and […] https://pulmonaryfibrosisnews.com/forums/activity/p/35116/ Sat, 17 Sep 2022 19:09:41 -0500 @charlene-marshall

Hello Charlene, my greetings and my best wishes for you and for this group.

I have been in this group for some time, although in reality, it is not me who suffers from this disease, but my wife.

We live in Orlando, Florida and we are of Venezuelan origin.
My wife does not speak English and I am barely managing… Read more

]]> 0 8ebc867b621813c85b46988584793ff1 Luis Pernia replied to the discussion Pirfenidone from India in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/pirfenidone-from-india/#post-33024 Tue, 06 Sep 2022 19:13:01 -0500 Reply to Pirfenidone from India

Hello, I spent some time buying the medicine in India, but I don’t know if the quality is good.
He sent it home with no problem.

]]> 156849197c65bdb282102dc4bf3c213d Luis Pernia replied to the discussion I Did Everything Right, So Why Did I End Up With Pulmonary Fibrosis? in the forum Flash Briefings & Podcasts https://pulmonaryfibrosisnews.com/forums/forums/topic/i-did-everything-right-so-why-did-i-end-up-with-pulmonary-fibrosis/#post-23047 Wed, 19 Feb 2020 00:18:15 -0600 Reply to I Did Everything Right, So Why Did I End Up With Pulmonary Fibrosis?

Hi everyone.  In particular, I am very hopeful that a cure for that disease will soon be found.  You have to hope, move on and look for new encouraging news.

]]> ef426c9fb04659849d2eef2ac341ad3a Luis Pernia replied to the discussion Lung Transplant Considerations. in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/lung-transplant-considerations/#post-22970 Thu, 13 Feb 2020 23:29:15 -0600 Reply to Lung Transplant Considerations.

Thank you for the answers to my question, I am grateful for the attention you take to answer.  They are all very kind.

]]> 9cbc8747cb404950de689f119fee4ac5 Luis Pernia posted an update in the group Research and Development: Greetings to all. I got this information that can […] https://pulmonaryfibrosisnews.com/forums/activity/p/17962/ Thu, 13 Feb 2020 14:38:29 -0600 Greetings to all. I got this information that can be helpful. They can translate it into English.
https://elmedicointeractivo.com/una-terapia-con-hormona-tiroidea-cura-la-fibrosis-pulmonar/

]]> 0 a8b382169c0a899d3e09e79d7d914c2c Luis Pernia joined the group Research and Development https://pulmonaryfibrosisnews.com/forums/activity/p/17961/ Thu, 13 Feb 2020 14:33:24 -0600 0 c4c8751536fd89bdb7f30c612c63d3a2 Luis Pernia replied to the discussion Lung Transplant Considerations. in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/lung-transplant-considerations/#post-22951 Thu, 13 Feb 2020 14:00:54 -0600 Reply to Lung Transplant Considerations.

Hi everyone.  I would like to know how much is the financial cost for a lung transplant?

]]> 5b8ce62b7b4315de68e8b87dce22f801 Luis Pernia posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/17685/#acomment-17692 Fri, 31 Jan 2020 20:36:19 -0600 Thanks Mark.

In reply to - Luis Pernia became a registered member ]]> bc2878333937479f4cd71e5edd018589 Luis Pernia became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/17685/ Fri, 31 Jan 2020 19:55:04 -0600 3