Melissa McKenzie

Hi Charlene –

I was hoping to respond back to you earlier but unfortunately,I tend to be a procrastinator by  nature!

Regarding teaching, I have Masters in Intensive Special Needs and my students presented with a variety of physical/cognitive challenges. I had a lot of staffing so despite the IPF diagnosis, I was able to work with few issues. I…[Read more]

Hi Steve –

I make notations of all the supplements,etc., that you post so I can research them to see if they might work for me. I am on several heart meds and I know you know such information needs to be taken into consideration before we try them.

The Facebook group I joined is called Westie Lung Disease – IPF in USA. Several members (humans…[Read more]

Hi Steve –

I totally agree with researching IPF and trying anything we might think will be of help. We advocate for ourselves and share information to others when we can. I just started pulmonary rehab and go twice a week. I also will have my first laser treatment tomorrow, weather permitting. It is snowing in Massachusetts with ice to follow. I…[Read more]

Hi Steve-

Love the story! I am thinking I should invest in something motorized! Would be great for yard work, but then again, I can use my ride on mower! It is not just for cutting the grass – motor over to one flower bed, clean it up and on to the next.Would also be helpful with yard decorating for the holidays – just throw decorations in the…[Read more]

Hello Charlene-

I am indeed happy to be a member of this group! You provide hope as well as a wealth of information and I look forward to all new publications. I retired from teaching a year ago so I could concentrate on my health. Being short of breath with simple exertion pretty much sucks for us – hope the word “sucks” isn’t offensive! We make…[Read more]

Andy,

Thank you for your quick reply! I will make phone calls tomorrow to both. I have remained in NSR since July thanks to Dofetilide and a cardioversion. My cardiologist was hoping it would make a difference in my shortness of breath but unfortunately it did not. Now my focus is on better lung health and this is a promising start! I am both…[Read more]

Hello!

This new member is happy to have found this group! I am very interested in the cold laser therapy issue and have read all of the posts regarding this potential treatment. My IPF was discovered when I went to the emergency room in 2014 for what I thought was asthma. Turned out I was in Afib and spent  4 days in the ICU to figure out which…[Read more]