Michelle Lantis-Harms

I struggle with showering, the humidity sucks my breath away. Doing dishes is another tough one for me, the bending over the sink puts a kink in my lung capacity. My dad got me a stool to sit on which helps. And getting to and from the car for work or any other reason. For work I use a suitcase with wheels. Sounds crazy I know, but I put my extra…[Read more]

I have written down several suggestions from above and look forward to some summer reading! I am a true crime fanatic and have read almost all of Ann Rule’s books. She has also written a few on spirits and ghosts that were quite intriguing. Recently I have started looking more at self help and self healing books. Any suggestions for that genre…[Read more]

I have had to do two of these since my diagnosis 8/17. I asked about supplemental oxygen as I felt I was going to need it. They did one then, and stopped me about less than 1 minute. Took me back to the room for a few minutes on 2 lpm. I made it about 30 feet and they sent me back to the room and decided to start me on 4 lpm when I was moving and…[Read more]

Charlene,

I have been using CBD Oil for the past 3 months and I love it. I am trying to find the right dosage for me to eliminate my lyrica and tramadol as they cause inflammation as well as help with Fibromyalgia and Neuropathy pain. A good friend of mine has lung issues, not yet determined and she has been using the CBD Oil for 6 months now.…[Read more]

Has anyone tried getting a prescription for an adjustable bed to see if insurance would cover it? It was just a thought as I have seen insurance pay for some pretty odd things. Just throwing that out there.

I first read about the Spoon Theory on a Lupus group I was in. I absolutely love the way it explains chronic illnesses. I also remind myself that if I choose to do an, what for me is, extreme activity such as taking my granddaughter to the zoo, I know have to give myself a lot of downtime afterwards to refill my spoons. Thanks for bringing the…[Read more]

My doctor told me to use zertec and flonase to help keep my nasal passages open but I have still occasional problems.

I have almost ordered one about a hundred times but haven’t yet for the fear of what you have experienced. Being on oxygen is stigma enough, I don’t want to add to that. I know I should being insulin dependent diabetic, this, and on oxygen but I can’t seem to get past my fear.

I ordered one from veterens.com I believe it was. I paid $70 for mine. It does all the vitals, times sleep, steps, etc. All of my vitals match almost perfectly except the O2 monitor, which was what I really wanted to work. I kept  mine as it does my steps and everything else works perfectly. I will check into the one from Costco though. Might be…[Read more]

I used to think it was the physical things that were harder. I had a best friend that I shared everything with and could rant for hours with her not being bothered by it at all. We had a falling out for unknown reasons. I tried trusting my sister but that didn’t work out so well. So apparantly she contacted my friend and asked her to please step…[Read more]

Chuck,

I am a lot like you. I HATE to ask for help and when I do, I apologize and agonize for it for days. I think trying to come to terms with the fact that I won’t be able to do some things again without help is the hardest part of this. I have always prided myself of being very independent. I have a loving husband who will move heaven and…[Read more]

As a type II diabetic, I am very interested in your study. I have been on metformin for over 10 years now and was diagnosed with IPF a year ago. They went back at least 4 years on CT Scans for kidney stones, and determined that I am stable at this time. Very excited to see what you determine. Please keep us posted and feel free to ask if I can be…[Read more]

I just read the article you posted and I am wanting to see if there is anyone anywhere near me that I can get in contact with. I have started researching holistic medicine for IPF. I found an article on yoga breathing that I have started trying to do. If I can find it, I will post it. I have been diagnosed Type II Diabetic for the past 10 years…[Read more]

I, too, have had a falling out with the person I thought was my best friend. I have had a LOT of issues hit the past 2 months and she has been unwilling to be there for me in even the most basic ways. She was the first person I told about my diagnosis, even before my husband. I shared everything with her. Everything changed when she found a…[Read more]