| Short Bio |
Diagnosed in 2019, familial PF, 5 family members have PF. Genetic testing found short telomere syndrome. Getting testing completed to be eligible for transplant when that time comes. Living life to its fullest every day.
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| Treatment / Medical Facility |
Yale University in CT and Brigham and Womens/Mass General in Boston
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| Current medication regimen |
Esbriet, Stiolto Respimat inhaler, nasal spray and allergy meds for post nasal drip
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| Best advice for PF symptom management |
Rest, restrict dairy, weight management and exercise to keep in the best condition possible.
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| How long have you or the person that you are caring for had PF? |
3 years
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