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Miltont replied to the topic Eastern Medicine alternative in the forum Diagnosis Information and General Questions 2 years, 12 months ago
Dr Don, are you happy to have a conservation with me about a proposed double blind trial for a non-medical treatment that I have been using to great effect? If so please email me at [email protected].
Cheers and thanks in anticipation
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Miltont replied to the topic Side effects of OFEV in the forum Ofev (Nintedanib) 2 years, 12 months ago
Hi everyone. I am not on Ofev but reading all your stories reminds me that I keep a container of ginger gums in the glovebox of my boat for anyone who gets seasick and they work. Chewing one is isually enough. Try your supermarket or health food shop. Natural ginger also works but is a bit strong for a lot of palates.
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Miltont replied to the topic The Awkwardness of Wearing A Mask In Public in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years ago
I have a high degree of “not giving a damn ” I guess but I am not the slightest bit self-conscious about wearing a mask. If I need to protect myself that is my business and no-one else’s. Be strong, people. You must care for yourself.
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Miltont replied to the topic Eastern Medicine alternative in the forum Diagnosis Information and General Questions 3 years ago
That eastern medicine sound appropriate for treating cystic fibrosis.
Richard, I had the lump in the throat and the soreness to breathe until my GP put me on a PPI (proton pump inhibitor) to suppress the manufacture of stomah acid. It worked. Ask your doctor if this could be your problem.
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Miltont replied to the topic Sharing Your IPF Story: How Do You Feel About It? in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years ago
I am a very pragmatic person. I face up to and handle reality very well. I don’t mind sharing. However, when I got the news and was told that at 79 I had an expectancy of 1 – 3 years without a transplant and I found that the oldest transplant approval was aged 72 I was deeply shocked. My wife was in the same hospital having just had a major…[Read more]
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Miltont replied to the topic An Interview With a Pulmonologist in the forum Diagnosis Information and General Questions 3 years ago
Well done, Mark. I woould like to add some explanation of the scarring problem and also an alert to a new drug to slow progress. I have been studying and treating scarring since 2005 with 100%. What happens and why exercise has to be treated cautiously is this. When the body sustains an injury, it takes some Collagen – the most abundant protein in…[Read more]
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Miltont joined the group
Research and Development 3 years ago
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Miltont replied to the topic Back Muscle Shrinkage Tied to Poor IPF Outcomes, Study Finds in the forum Flash Briefings & Podcasts 3 years ago
<p style=”text-align: left;”>I have never heard of this before but I do have a constant fight with the psoas muscles in my back. These are the muscles over the kidneys and when sore, sometimes have sufferers complain of kidney pain. I would never have associated it with IPF but it makes sense, since the timing of IPF symptoms (pre diagnosis) and…[Read more]
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Miltont replied to the topic Public Fears Surrounding COVID-19 in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years ago
My Wife and I have not changed our lives. My children and grandchildren keep urging us to stay indoors but that is not going to happen. I wore a P2 rated mask to screen out smoke during the recent bushfire crisis here in Victoria and NSW which was prudent but I don’t wear one now. I always practise good hygiene, washing my hand when I cone hom I…[Read more]
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Miltont replied to the topic Corona virus in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years ago
Thanks to Lorraine for forwarding the hints to help prevent infection. I was going to do the same but my access had crashed. The only thing else that I re all the original author saying wad that you touch your mouth or nose on average more than 90 times a day. As he wrote and as Charlene noticed, wearing blue latex gloves reminds you not to touch…[Read more]
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Miltont became a registered member 3 years ago