• Nan and Profile picture of MediMedi are now friends 7 months ago

  • Medi posted a new activity comment 8 months, 4 weeks ago

    Thank you Charlene.
    I get this message now:

    ERROR: Your reply cannot be created at this time.

    Any help is greatly appreciated . There is a lot Inwould like to ask ans share.

    Kind regards

    • Ill send this update error message to our tech team now Mehdi and see what I can find out for you. Hang in there, we’ll find a solution for you. I’ll get back to you as soon as I can when the team has an answer/suggestion…

      Charlene.

  • Medi posted a new activity comment 9 months ago

    I still can’t post. I will wait a while longer

    • Hmm, that is off Mehdi! Our tech team confirmed you have been added to the “white list”. Are you still getting the inappropriate word error notification? Or is it something else blocking you from posting? I’m happy to continue trouble shooting this for you as I’d really like it to work for you! Let me know 🙂

      Charlene.

      • Thank you Charlene.
        I get this message now:

        ERROR: Your reply cannot be created at this time.

        Any help is greatly appreciated . There is a lot Inwould like to ask ans share.

        Kind regards

        • Ill send this update error message to our tech team now Mehdi and see what I can find out for you. Hang in there, we’ll find a solution for you. I’ll get back to you as soon as I can when the team has an answer/suggestion…

          Charlene.

  • Medi posted a new activity comment 9 months ago

    Thank you Charlene. I will try again in s while.
    Take good care

  • Medi posted an update 9 months ago

    @charlene-marshall

    I have been trying to post a response to your questions regarding eating and the grazing diet, but I kept getting errors. Apparently I am using an inappropriate word in my text.
    I tried posting it here too, but the same issue occurs.

    I will redact and try again. Bear with mem

    All the best
    Mehdi

    • Hi Mehdi, ( @mtaba )

      Thanks so much for your reply! The forums are a bit finicky sometimes, and we’ve unfortunately run into the “posting an inappropriate word” barrier before, when members definitely aren’t doing that in their text. I’ll have our tech team add you to the “white list” of approvals, so you shouldn’t face this barrier going…[Read more]

      • Medi replied 9 months ago

        Thank you Charlene. I will try again in s while.
        Take good care

      • Medi replied 9 months ago

        I still can’t post. I will wait a while longer

        • Hmm, that is off Mehdi! Our tech team confirmed you have been added to the “white list”. Are you still getting the inappropriate word error notification? Or is it something else blocking you from posting? I’m happy to continue trouble shooting this for you as I’d really like it to work for you! Let me know 🙂

          Charlene.

          • Thank you Charlene.
            I get this message now:

            ERROR: Your reply cannot be created at this time.

            Any help is greatly appreciated . There is a lot Inwould like to ask ans share.

            Kind regards

            • Ill send this update error message to our tech team now Mehdi and see what I can find out for you. Hang in there, we’ll find a solution for you. I’ll get back to you as soon as I can when the team has an answer/suggestion…

              Charlene.

  • Medi posted an update 9 months ago

    @marianne Dear Marianne,
    Thank you for your kind message regarding the drugs.
    The primary reason I am not taking either of the drugs is the side effects. Both drugs, to my under standing, claim they COULD. ( Not guaranteed would) slow down the Fibrosis progressing, and the slow down rate varies from person to person.
    I tried OFEV for 2 weeks and…[Read more]

  • Medi changed their profile picture 9 months ago

  • Hi Charlene,

    I am new to the forum.  I was diagnosed with IPF 14 months ago.  I am not taking any of the treatment drugs (nintedanib or pirfenidone) for it.

    I can confirm that eating big meals do impact my breathing and sometimes kick start a cough attack.  As most IPF patient, I suffer from Silent Acid reflux and I believe it is the culprit. I…[Read more]

  • Medi became a registered member 9 months ago

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