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Natalie Mondor

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@nataliem

Hello I am trying to reply to the all the wonderful people who answered my question but I keep getting an error message that I can post a reply at this moment. What am I doing wrong ? Thanks View
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    Natalie Mondor replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 week, 3 days ago

    Thanks again for this tip. So you’ve been using the Helios for seven years! Then why is it not advertised more? Do we need better search terms?
    So happy to have some hope to leave the house for fun !

    Natalie

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    Natalie Mondor replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 week, 3 days ago

    Bill,

    Thanks so much for sharing the information on the Helios Marathon. It sounds amazing! It also seems like a lot of people don’t know about it. Haven’t seen it in any lists of portable oxygen devices. Is there a reason?

    Thanks again

    Natalie

  • Profile picture of Natalie Mondor

    Natalie Mondor started the topic Home Fill oxygen systems in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 5 days ago

    <p style=”text-align: left;”>Hello,</p>
    <p style=”text-align: left;”>What do you think of home fill oxygen systems? They seem to be a great solution for high-flow users, in terms of unlimited oxygen without having to go through an oxygen provider. But you would lose the provider’s expertise and truly be on your own. T…[Read more]

  • Profile picture of Natalie Mondor

    Natalie Mondor replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 week, 5 days ago

    Are any of you on a home fill system? I think that Inogen makes one but it’s not the same as what folks are mentioning here, or is it? It seems like having one of these systems would eliminate the oxygen provider. Thanks
    Natalie

  • Profile picture of Natalie Mondor

    Natalie Mondor replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 weeks, 2 days ago

    Hello PF caregiver

    Yes, very frustrating. Here’s what I do to save some tank time. I’m also on 4LPM. In the car, I can be on 2LPM so I use the Eclipse I have and try not to move. Then I switch to the tank before getting out of the car.

    Natalie

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    Natalie Mondor replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 month ago

    Update on the Oxymizer: it works really well, but only on the tank. Not on the concentrator or the Eclipse. The research was done in a clinical setting where only tanks were used, so it makes sense.
    Happy New Year

    Natalie

  • Profile picture of Natalie Mondor

    Natalie Mondor replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 months, 3 weeks ago

    Here’s an update to this post from last month: I got a Sequal 5 (19 pounds) from my provider. The unit is both continuous (up to 3 LPM) and POC (up to 6 whatever ml that is). At 3 LPM, it has only 75 minutes of battery. It charges in the car, but only at 2LPM. Otherwise it will charge to 3 but it takes a few hours. I keep it plugged in 24/7. It i…[Read more]

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    Natalie Mondor replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 months, 2 weeks ago

    Dave

    I read that the oxymizer is for tanks and in home continuous units, not pulse machines.

    Natalie

  • Profile picture of Natalie Mondor

    Natalie Mondor replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 months, 2 weeks ago

    Thanks to everyone for their responses. They have been most helpful. I will check out all the information you suggested.
    Natalie

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    Pat and Profile picture of Natalie MondorNatalie Mondor are now friends 3 months, 3 weeks ago

  • Profile picture of Natalie Mondor

    Natalie Mondor replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 months, 3 weeks ago

    Hello Dave,

    Thanks for sharing details of your oxygen use. We’re all doing what we can. It’s hard to cope sometimes. This group helps.
    Best

    Natalie

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    Natalie Mondor replied to the topic Can a spirometer increase lung capacity in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 months, 3 weeks ago

    Thanks Jim. At least you’re having fun. You’re so right about the spirometer being a total drag ! Natalie

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    Natalie Mondor replied to the topic Can a spirometer increase lung capacity in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 months, 3 weeks ago

    Thanks Karen. I have an Airlife that I use but my sats go down too much if I don’t wait a good 5 minutes between breaths. I don’t seem to make much progress: still at 750, although I got to 1000 when I was taking prednisone. Have you increased your intake? Natalie

     

  • Profile picture of Natalie Mondor

    Natalie Mondor replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 months, 3 weeks ago

    Karen

    Thanks for this information. I was thinking that maybe the Sequal 5 might work, as it goes to 3 LPM continuous and has 6 POC settings. But if I understand correctly, the max is still 3 LPM.
    Hope you are doing well.
    Natalie

  • Profile picture of Natalie Mondor

    Natalie Mondor replied to the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 months, 3 weeks ago

    Randy,

    Thanks. I completely agree. I spoke with a someone at the oxygen concentrator store in Colorado and he said that the POC numbers aren’t the same as the LPM numbers. The Inogen and others deliver the equivalent of 1-2 lpm continuous and those other numbers are to accommodate different breathers on the POC. But still no higher than 2 LPM.  …[Read more]

  • Profile picture of Natalie Mondor

    Natalie Mondor started the topic Leaving the house on 4LPM oxygen? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 months, 4 weeks ago

    Hello

    I am aware of only three portable oxygen concentrators that deliver up to 3LPM. Are there any that go higher? How do people who need 4 + LPM leave the house? Go to the doctor?

    Thanks in advance for any suggestions.
    Natalie

  • Profile picture of Natalie Mondor

    Natalie Mondor started the topic Can a spirometer increase lung capacity in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 4 months ago

    Some members have mentioned the Aerofit and other spirometers. Do they do what they claim ? Is it worth the money ? I’m hoping to make some improvement or at least be stable for my next PFT in December. What is your experience ?
    Thanks,

    Natalie

  • Profile picture of Natalie Mondor

    Natalie Mondor replied to the topic all us old folks with radiation induced pulmonary fibrosis???? in the forum Living with Pulmonary Fibrosis: 50+ 4 months, 2 weeks ago

    David,

    In my experience, doctors don’t usually talk about the long term effects of radiation or even know when the effects might take place. I think that is more recent. Using myself as an example, I had radiation for left breast cancer in 1984 and then lung cancer in the left lobe in 2009. Then the doctors said they didn’t know what caused the…[Read more]

  • Profile picture of Natalie Mondor

    Natalie Mondor replied to the topic all us old folks with radiation induced pulmonary fibrosis???? in the forum Living with Pulmonary Fibrosis: 50+ 4 months, 3 weeks ago

    Anna,

    Thanks for the link. It seems that they also post the webinars on the site afterwards.
    I’m looking forward to finding out more about ILD.

    Natalie

  • Profile picture of Natalie Mondor

    Natalie Mondor replied to the topic all us old folks with radiation induced pulmonary fibrosis???? in the forum Living with Pulmonary Fibrosis: 50+ 5 months ago

    Thank you Anne, Anna and Margaret for sharing. Invaluable information for all of us.
    Natalie

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