Natalie Mondor

Jofac

Thanks so much for this thoughtful message. It has cheered me up today. I’m back on 10 mg of prednisone after having a very bad day at PT. It’s only been a few days but I feel better, although not as energetic as before stepping down. I am certainly going to stay with the exercise even if it’s difficult. I am hoping to go outside but my ox…[Read more]

Margaret,
So much for being a rare case! For me, it’s an ongoing story in that the radiation for breast cancer in 1984 (when lumpectomy and radiation first became an option at Vanderbilt university hospital), led to lung cancer in 2009 before my recent diagnosis of  pf. In 2009 the docs wouldn’t say what caused the lung cancer (no risk fact…[Read more]

Millie,

Thanks for that very important information. Hope you are doing well.
Natalie

Thank you Joe for the information and link to the article on oxygen toxicity.  It seems like every medication and treatment involves a balance of risk and reward. Right now I’m stepping down off prednisone, and already the pain that was gone for 6 weeks is coming back. The only thing for me without a downside (so far) is exercise. Stay sa…[Read more]

Kathleen,

Thanks for sharing this valuable information. It’s good to have a first-hand account, even if it wasn’t successful for you. It really fills in a lot of gaps in the information I have.
Hope you are doing well.
Natalie

Hi Margaret,

Thanks for your reply. My PT therapist underwent the course of hyperbaric therapy after intestinal cancer and found it helpful for the swelling. I still have edema in my breast and arm and that would probably be reduced. So useful for some things but not for others!

Be well,

Natalie

Peter,

Thanks so much for this really helpful information. It clarifies some questions I had and will inspire me to do more exercise. So relevant to me today after a  pulmonologist visit yesterday to see how I did after 5 weeks of PR. “Impressed” and “excited” was what he said, a big change from the doom and gloom from early June. So I feel con…[Read more]

Hi Charles,

I so agree with you and I echo your sentiments. It’s great that despite all that, you’re still here!
I’m glad you’re happy with your portable. Can you tell us the brand name ?

Natalie

Thanks, Christie.
N

Hello Christie,

Thanks for answering. Not sure but I did manage to answer. Is there a limit to #of characters in a reply to a reply? #of replies ? There was one that was pending last night. Sorry if I missed the rules.
This site and especially the forums have been such a help and comfort to me.  I’ve told everyone I know about it, and how in…[Read more]

1. Thanks, I’m glad you found something that works for you.

Sue,

That’s so disappointing. And it’s heavy too, on wheels. Is it also hard to put in the car ? Although with what you have said about the battery, it doesn’t look like it would be good for me.
Thanks and be well.
Natalie

Roger,

I totally share your frustration. It is very tiring to try to educate the people who are supposed to be helping us. But I’m so grateful to you and the members  of the PF forum for all the advice. It really helps.
Natalie

Pattye, thanks for the good advice.
Natalie

Thank you, David. My best to you as well.
Natalie

Thanks Pete. I share your frustration. Doctors, physical therapists and certainly oxygen providers should know better. I’m wondering too if the Medicare reimbursement has something to do with reliance on the smaller, cheaper units. Thanks for suggesting the Eclipse 5. I’ll check it out.
Natalie