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	<title>Pulmonary Fibrosis News Forums | PattiPA | Activity</title>
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				<title>PattiPA posted a new activity comment</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/46987/#acomment-47024</link>
				<pubDate>Sat, 28 Mar 2026 14:47:25 -0500</pubDate>

									<content:encoded><![CDATA[<p>Good luck.  Glad you found something that works!</p>
				<strong>In reply to</strong> -
					<a href="https://pulmonaryfibrosisnews.com/forums/members/onre/" data-bb-hp-profile="11691" rel="nofollow">David Reno</a> posted an update <p>I have taken OFEV for 4 years, In Jan. I started JASCAYD, taking them together, the diarrhea was out of control. I have stopped OFEV now just JASCAYD. The diarrhea is gone, no GI [&hellip;]</p>					]]></content:encoded>
				
				
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				<title>PattiPA posted a new activity comment</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/46987/#acomment-47018</link>
				<pubDate>Fri, 27 Mar 2026 15:39:38 -0500</pubDate>

									<content:encoded><![CDATA[<p>I have been taking 100mgs of Ofev 2 times daily for 5 mos and have no side effects.  If you are taking 150MGS and have terrible side effects, don&#8217;t quit Ofev.  Ask provider for the 100 mg dose. It could make a difference.</p>
				<strong>In reply to</strong> -
					<a href="https://pulmonaryfibrosisnews.com/forums/members/onre/" data-bb-hp-profile="11691" rel="nofollow">David Reno</a> posted an update <p>I have taken OFEV for 4 years, In Jan. I started JASCAYD, taking them together, the diarrhea was out of control. I have stopped OFEV now just JASCAYD. The diarrhea is gone, no GI [&hellip;]</p>					]]></content:encoded>
				
				
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				<title>PattiPA replied to the discussion Vaccinations and IPF in the forum Healthcare Questions</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/vaccinations-and-ipf/#post-39398</link>
				<pubDate>Fri, 27 Mar 2026 15:32:10 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/vaccinations-and-ipf/#post-39398"><span class="bb-reply-lable">Reply to</span> Vaccinations and IPF</a></p> <div class="bb-content-inr-wrap"><p>I have never had any reactions to Flu, RSV, Pneumonia or Covid.  Each person may have different responses.  I also take 100mgs of Ofev twice daily and have had no side effects.  </p>
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				<title>PattiPA replied to the discussion Tell me your questions about Jascayd (nerandomilast) in the forum Healthcare Questions</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/tell-me-your-questions-about-jascayd-nerandomilast/#post-39266</link>
				<pubDate>Wed, 28 Jan 2026 00:03:49 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/tell-me-your-questions-about-jascayd-nerandomilast/#post-39266"><span class="bb-reply-lable">Reply to</span> Tell me your questions about Jascayd (nerandomilast)</a></p> <div class="bb-content-inr-wrap"><p>Go on BI cares web site.  They have patient assistance for Jascayd as the do for Ofev and other m3dications</p>
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				<title>PattiPA replied to the discussion clinical trial studying zinc and nicotinamide riboside in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/clinical-trial-studying-zinc-and-nicotinamide-riboside/#post-39225</link>
				<pubDate>Wed, 14 Jan 2026 14:36:02 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/clinical-trial-studying-zinc-and-nicotinamide-riboside/#post-39225"><span class="bb-reply-lable">Reply to</span> clinical trial studying zinc and nicotinamide riboside</a></p> <div class="bb-content-inr-wrap"><p>I have noticed that people take quercitin along with the other supplements.  A word of caution from my physician is that this is contraindicated if you take statins.</p>
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				<title>PattiPA replied to the discussion clinical trial studying zinc and nicotinamide riboside in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/clinical-trial-studying-zinc-and-nicotinamide-riboside/#post-39180</link>
				<pubDate>Wed, 07 Jan 2026 14:56:40 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/clinical-trial-studying-zinc-and-nicotinamide-riboside/#post-39180"><span class="bb-reply-lable">Reply to</span> clinical trial studying zinc and nicotinamide riboside</a></p> <div class="bb-content-inr-wrap"><p> Mike I signed up for this trial but was rejected due to the fact the PA is not an inluced State.  There are only about 5 states where recruitment is offered.  I deleted the email or I would have posted it.</p>
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				<title>PattiPA replied to the discussion clinical trial studying zinc and nicotinamide riboside in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/clinical-trial-studying-zinc-and-nicotinamide-riboside/#post-39173</link>
				<pubDate>Sun, 04 Jan 2026 16:04:37 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/clinical-trial-studying-zinc-and-nicotinamide-riboside/#post-39173"><span class="bb-reply-lable">Reply to</span> clinical trial studying zinc and nicotinamide riboside</a></p> <div class="bb-content-inr-wrap"><p>Just an FYI, reservatrol is contraindicated if you are taking a statin.  Brst to che k with your physican before using any OTC&#8217;s.</p>
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				<title>PattiPA replied to the discussion clinical trial studying zinc and nicotinamide riboside in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/clinical-trial-studying-zinc-and-nicotinamide-riboside/#post-39162</link>
				<pubDate>Fri, 02 Jan 2026 20:21:12 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/clinical-trial-studying-zinc-and-nicotinamide-riboside/#post-39162"><span class="bb-reply-lable">Reply to</span> clinical trial studying zinc and nicotinamide riboside</a></p> <div class="bb-content-inr-wrap"><p>Have you informed your physician and have you had any issues with Ofev while taking the OTCs?  I am taking 100mg of Ofev with no side effects for the past 2 mos.  Thank you.</p>
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				<title>PattiPA replied to the discussion clinical trial studying zinc and nicotinamide riboside in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/clinical-trial-studying-zinc-and-nicotinamide-riboside/#post-39158</link>
				<pubDate>Fri, 02 Jan 2026 20:06:49 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/clinical-trial-studying-zinc-and-nicotinamide-riboside/#post-39158"><span class="bb-reply-lable">Reply to</span> clinical trial studying zinc and nicotinamide riboside</a></p> <div class="bb-content-inr-wrap"><p>Are you taking those doses and ofev.  Wondering if there are any side effects or contraindications with ofev.</p>
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				<title>PattiPA replied to the discussion clinical trial studying zinc and nicotinamide riboside in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/clinical-trial-studying-zinc-and-nicotinamide-riboside/#post-39153</link>
				<pubDate>Fri, 02 Jan 2026 00:48:41 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/clinical-trial-studying-zinc-and-nicotinamide-riboside/#post-39153"><span class="bb-reply-lable">Reply to</span> clinical trial studying zinc and nicotinamide riboside</a></p> <div class="bb-content-inr-wrap"><p>What dosage are you taking of each?  Thank you</p>
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				<title>PattiPA replied to the discussion Zinc NAD+ Resveratrol to increase SIRT1 in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/zinc-nad-resveratrol-to-increase-sirt1/#post-39145</link>
				<pubDate>Tue, 30 Dec 2025 23:52:39 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/zinc-nad-resveratrol-to-increase-sirt1/#post-39145"><span class="bb-reply-lable">Reply to</span> Zinc NAD+ Resveratrol to increase SIRT1</a></p> <div class="bb-content-inr-wrap"><p>How long have you been on this cocktail and have you noticed and difference in your test results.  Thank you!</p>
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				<title>PattiPA replied to the discussion Lazer therapy in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/lazer-therapy/#post-39030</link>
				<pubDate>Thu, 20 Nov 2025 15:06:57 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/lazer-therapy/#post-39030"><span class="bb-reply-lable">Reply to</span> Lazer therapy</a></p> <div class="bb-content-inr-wrap"><p>I am on Medicare and it is not covered.  I doubt any insurance will cover it since there have not been human studies and it is not FDA approved.  I spoke with my pulmonologist and he did not discourage it but said it was only studied on lab animals.</p>
<p>I feel there are no side effects for me and my Chiropractor has spoken to Dr Hall before&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-46323"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/lazer-therapy/#post-39030" rel="nofollow"> Read more</a></span></p>
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				<title>PattiPA replied to the discussion Lazer therapy in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/lazer-therapy/#post-39028</link>
				<pubDate>Wed, 19 Nov 2025 17:01:34 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/lazer-therapy/#post-39028"><span class="bb-reply-lable">Reply to</span> Lazer therapy</a></p> <div class="bb-content-inr-wrap"><p>summuslaser.com/find-a-provider/     can let you know if there is a provider near you.  Just put in your zip code.</p>
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				<title>PattiPA replied to the discussion Ofev management of side effects in the forum Healthcare Questions</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-management-of-side-effects/#post-39026</link>
				<pubDate>Wed, 19 Nov 2025 03:54:46 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-management-of-side-effects/#post-39026"><span class="bb-reply-lable">Reply to</span> Ofev management of side effects</a></p> <div class="bb-content-inr-wrap"><p>PS I am 74 yes old.</p>
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				<title>PattiPA replied to the discussion Ofev management of side effects in the forum Healthcare Questions</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-management-of-side-effects/#post-39025</link>
				<pubDate>Wed, 19 Nov 2025 03:53:58 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-management-of-side-effects/#post-39025"><span class="bb-reply-lable">Reply to</span> Ofev management of side effects</a></p> <div class="bb-content-inr-wrap"><p>I started 100 mgs, bid 2 months ago and have only had slight nausea rarely and some indigestion occaisionly.  I seem to be able to manage all types of food and don&#8217;t necessarily need protein with Ofev.  I do swim laps for an hour and alternate with 5 mile walks and perhaps that may assist in my tolerance.  Don&#8217;t give up and try different&hellip;<span class="activity-read-more" id="activity-read-more-46312"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-management-of-side-effects/#post-39025" rel="nofollow"> Read more</a></span></p>
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				<title>PattiPA replied to the discussion Lazer therapy in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/lazer-therapy/#post-39004</link>
				<pubDate>Fri, 14 Nov 2025 22:59:44 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/lazer-therapy/#post-39004"><span class="bb-reply-lable">Reply to</span> Lazer therapy</a></p> <div class="bb-content-inr-wrap"><p>Dr Hall found a Chiropractor near my home that has the Summus.  He is waiting for Dr Hall to confirm if his protocol is still current as he has another patient also waiting for treatment!</p>
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				<title>PattiPA replied to the discussion Lazer therapy in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/lazer-therapy/#post-38995</link>
				<pubDate>Mon, 10 Nov 2025 22:29:55 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/lazer-therapy/#post-38995"><span class="bb-reply-lable">Reply to</span> Lazer therapy</a></p> <div class="bb-content-inr-wrap"><p>Can someone recommend an affordable red laser ( is it a cold laser?) that I can purchase and will meet the standards?  I am not at all familiar with settings, etc.  My therapists in my area are unfamiliar with using this for ILD.  PLEASE HELP!  Thank you!!!</p>
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				<title>PattiPA replied to the discussion Lazer therapy in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/lazer-therapy/#post-38978</link>
				<pubDate>Fri, 07 Nov 2025 14:58:14 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/lazer-therapy/#post-38978"><span class="bb-reply-lable">Reply to</span> Lazer therapy</a></p> <div class="bb-content-inr-wrap"><p>Since medicare does not cover red light laser therapy, can someone provide the average cost per treatment</p>
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				<title>PattiPA replied to the discussion Nerandomilast approved by the FDA in the forum Treatments and Science</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/nerandomilast-approved-by-the-fda/#post-38974</link>
				<pubDate>Sat, 01 Nov 2025 13:58:57 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/nerandomilast-approved-by-the-fda/#post-38974"><span class="bb-reply-lable">Reply to</span> Nerandomilast approved by the FDA</a></p> <div class="bb-content-inr-wrap"><p>Does anyone know if patient assistance will be available?  Wellcare&#8217;s coverage for Ofev was $1800/mo which I can&#8217;t afford but BI Cares really came through for me.  It would be great if financial assistance would be available.</p>
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				<title>PattiPA replied to the discussion Deep Tissue (or red light) Laser Therapy in the forum Using Our Forums</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/deep-tissue-or-red-light-laser-therapy/#post-38930</link>
				<pubDate>Sat, 11 Oct 2025 14:59:39 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/deep-tissue-or-red-light-laser-therapy/#post-38930"><span class="bb-reply-lable">Reply to</span> Deep Tissue (or red light) Laser Therapy</a></p> <div class="bb-content-inr-wrap"><p>I found this information:</p>
<p>Red light therapy, also known as <a target='_blank' href="https://www.google.com/search?client=tablet-android-samsung-rvo1&amp;sca_esv=9e6dc345315a8504&amp;sxsrf=AE3TifO6-n_pJayqwYn4QtMCvYXX9hInQw%3A1760194638357&amp;q=photobiomodulation+therapy&amp;sa=X&amp;ved=2ahUKEwjKpp6BtJyQAxWeF1kFHbitK_wQxccNegQIGxAB&amp;mstk=AUtExfAgHWkIDzBaPBtre5O39sS_RrJqvPYaey_4v2n564peUi3NQCnCnD3-GHO2blQDgeuBM1xcwHo7JZhiIQ_UHctM46y9pzY1VXQK4EKFfGreab52-DzgXJl_V8IO5hjeoJWZ4HUZIGDjLKWhFvH5k5wJTipeQWgUFCjpEII-UhXjSxj7OB5ZLYsDD3AasE1U6j9N-v1itByTNQATxRL_PXIKb53Lz-9c-GoFJ0QO1lmABFP55cCxs7M3HVKNTZbMEoboA1igUyXgQo89YmziJVvh&amp;csui=3" rel="nofollow">photobiomodulation therapy</a> (PBMT), shows promise in treating pulmonary fibrosis by &lt;mark&gt;reducing inflammation, decreasing collagen production, and improving lung mechanics in animal models&lt;/mark&gt;. While still an experimental area, PBMT has demonstrated beneficial effects by&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-46144"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/deep-tissue-or-red-light-laser-therapy/#post-38930" rel="nofollow"> Read more</a></span></p>
<div class="bb-link-preview-container"><div class="bb-link-preview-info"><p class="bb-link-preview-link-name">google.com</p><p class="bb-link-preview-title"><a href="https://www.google.com/search?client=tablet-android-samsung-rvo1&#038;sca_esv=9e6dc345315a8504&#038;sxsrf=AE3TifO6-n_pJayqwYn4QtMCvYXX9hInQw%3A1760194638357&#038;q=photobiomodulation+therapy&#038;sa=X&#038;ved=2ahUKEwjKpp6BtJyQAxWeF1kFHbitK_wQxccNegQIGxAB&#038;mstk=AUtExfAgHWkIDzBaPBtre5O39sS_RrJqvPYaey_4v2n564peUi3NQCnCnD3-GHO2blQDgeuBM1xcwHo7JZhiIQ_UHctM46y9pzY1VXQK4EKFfGreab52-DzgXJl_V8IO5hjeoJWZ4HUZIGDjLKWhFvH5k5wJTipeQWgUFCjpEII-UhXjSxj7OB5ZLYsDD3AasE1U6j9N-v1itByTNQATxRL_PXIKb53Lz-9c-GoFJ0QO1lmABFP55cCxs7M3HVKNTZbMEoboA1igUyXgQo89YmziJVvh&#038;csui=3" target="_blank" rel="nofollow">Google</a></p><div class="bb-link-preview-excerpt"><p>Google</p></div></div></div></div>]]></content:encoded>
				
				
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				<title>PattiPA replied to the discussion Not taking antifibrosis medications in the forum Supplements and Non-traditional Management of PF</title>
				<link>https://pulmonaryfibrosisnews.com/forums/forums/topic/not-taking-antifibrosis-medications/#post-38922</link>
				<pubDate>Wed, 08 Oct 2025 14:48:40 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/not-taking-antifibrosis-medications/#post-38922"><span class="bb-reply-lable">Reply to</span> Not taking antifibrosis medications</a></p> <div class="bb-content-inr-wrap"><p>I am very sensitive to drug side effects.  After 2 years if being diagnosed with no change in my pulmonary tests and SaO2 sats at 98-99, I have started on Ofev at 100 mgs bid.</p>
<p>So far so good.  I take the meds with nigh protein shakes and fingers crossed, no prblems.  Please don&#8217;t let the side effects scare you off.  There may be a way to start&hellip;</p>
<p><span class="activity-read-more" id="activity-read-more-46121"><a href="https://pulmonaryfibrosisnews.com/forums/forums/topic/not-taking-antifibrosis-medications/#post-38922" rel="nofollow"> Read more</a></span></p>
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				<title>PattiPA became a registered member</title>
				<link>https://pulmonaryfibrosisnews.com/forums/activity/p/45993/</link>
				<pubDate>Mon, 15 Sep 2025 14:14:48 -0500</pubDate>

				
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