Biography

Name

Paul F Nichter

Nickname

paul-f-nichter

Gender

Male

Location

Maine

Relationship

Patient

Short Bio

I have had a 50 year carer in Construction work of all kinds. I assume the various kinds of dusts and fumes are what led to my IPF. I have never smoked, though Dad was a chain smoker of Lucky Strikes when I was growing up. I have have had an awareness for 40 years that my lungs were the weakest system in my body and had always assumed I would eventually die as a lunger, but never knew anything about IPF until my diagnosis just a couple of months ago in August 2019, so I am just starting to learn to negotiate this. Using O2 24/7

I am a candidate for lung transplant if I can pass all the preliminary tests, which appears likely. Scary things to think about.

Type of Diagnosis

IPF

Treatment / Medical Facility

Brigham and Womens in Boston

Current medication regimen

Esbriet, Prednisone

Lung transplantation status

to be determined, currently in evaluation process

Supplemental Oxygen

yes

Best advice for PF symptom management

Plan every moment. Don’t be hurried

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

Facebook

How long have you or the person that you are caring for had PF?

probably ten years. Only diagnosed recently

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