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  • Pat Cunningham

    Member
    May 20, 2021 at 4:48 pm in reply to: Has OFEV been effective in slowing your progression?

    I am 72 yrs old and recently put on OFEV after searching for an answer since 2015.  Finally biopsy last summer showed IPF.  I am on oxygen 24 hours now – o2 level drops under 80 on exertion or stairs without it.

    I asked about lung transplant at UAB Hospital and was told that Vanderbilt in Nashville would take patients who are older and higher risk and have asked for referral for evaluation.   Then they called and said I can do the evaluations here at UAB and then be referred to Vanderbilt.

    My husband had a heart transplant 3.5 years ago – I know it is very scary and recovery is tough.  Lots of anti-rejection medicine to take for the rest of your life.  But since there is no cure for IPF, you should at least consider it and be evaluated.

    I am thankful for these groups and information it provides as getting proper information and education is difficult process.

    Thanks

    Pat